Anorexia Kills

For whatever reason, I feel the need to preface this post with a declaration that I do not buy the Daily Mail. Finding it, all too often, a thinly veiled excuse to propound nationalistic views, I frequently have to remind readers that the world is not really that bad a place unless they believe all they read in this trussed up tabloid.

I was, however, drawn to the full page article about a long suffering mother, who, five years after her daughter’s tragic death, has made the decision to release the girl’s diaries. Diaries that record the tortured journey of Loredana Verta, a bright, talented sixteen year old, who was dead within three years. Heart attack.

Rightly or wrongly, some of  this young sufferer’s innermost thoughts and feelings are laid bare in newsprint for all to see.

The workings of this girl’s mind are utterly consumed by the illness. Her writing is littered with scribbled self loathing, capitalised screams of  “I HATE ME… I HATE MY BODY”.   Most teenagers feels like this at some point. Hormones, skin, peer pressure, perfection culture, fashion… It’s all there to taunt the aspiring, spot laden, hormone raging teen.

Except Loredana’s thoughts are all centred on weight loss and weight gain and wrongly perceived fat.
To my mind, what is more haunting than the poisonous self hatred, the desperation, the pleas to God and the cries for help, are the words of a grieving mother, who says,

“Lorry thought she could live with the condition – that as long as she was thin, she would be OK. She didn’t realise that anorexia is a deadly disease. It is a killer”.*

For long term sufferers, ‘old hands’,
 Anorexia can be so ingrained, so deeply habitual, that we forget that it is something UNnatural… an invasion. It becomes like Stockholm Syndrome… It’s is our natural fall back position.

It KILLS.
Let’s get real.
It is deadly.

We think it won’t ever happen to us, and yet, why wouldn’t it? It killed Loredana in just THREE years.

Of all psychiatric disorders, Anorexia is the biggest killer. TWENTY PERCENT of sufferers die prematurely.^

I hear my wake up call.

Can you hear yours?

* Emphasis is mine
^ Statistics according to B-EAT

Hole In The Wall God

Although I rarely mention it in my writing here, my faith is one aspect of my life which I think would fundamentally change the very essence of my being were it to completely disappear. In truth, my spiritual journey, much like my therapy journey, has been a challenging mixture of blindness and revelations; of soaring and stumbling; and of denials and acceptances.

Proud of this shot! 

I've been in places of unshakeable certainty, unable to understand how anyone could ever question such a tangible God. In later life, there have been times when I've swallowed bitterly as depression and the weary despair and fatigue that accompanies it, flecked inky pools of indifference and doubt across any conviction that I once had.

At this point on the journey, I stand on a different mountain, overlooking a very different landscape.
A part of me draws some strength from the inner sense that God stands with me.
This acknowledgement of 'a higher power' seems to play a crucial role in recovery. AA refer to the 'higher power', as do a range of other successful addiction recovery programs; the theory being that as human beings, we are often weak willed and for all our good intentions, cannot free ourselves from the power of ingrained behaviours and habits. We need to draw on a strength that is not 'from' us, but is outside of us.

A part of me worries as I consider how God is referred to in the 12 step programs.
Does it not all sound a little bit 'God-as-hole-in-the-wall' ish?
I'm not sure.

What I do know is that right now, I find myself knocking on heaven's door morning, noon and night, asking for supernatural strength with which to fight the Anorexic howling which coarses through my mind interminably.
I pray as I sit down to eat my snacks, my meals  and as I battle the urges to spit my food out after chewing it.

Groundhog: Eat My Heart Out

The cycle of change seems perpetual and impossible to break out of.. The whispering of the Anorexia is so much louder than the voice of reason and recovery. The stupidest thing is that I fall for it time and time again. After years of the same tiresome thoughts and feelings; years of the illness telling me that I am piling on the pounds; that I am 'out of control' and that I look 'normal', I am STILL shocked when the scales disprove it. I am STILL more surprised by the hard facts, figures that plainly contradict the lies. 

Pillars of Salt. Square One.

But Lot was so afraid he couldn’t move. So the angels grabbed him by the hand, and they grabbed the hands of his wife and of his two daughters, and they led them out of the city. As soon as they were safely out of the city, one of the angels said, “Flee for your lives! Don’t look back, and don’t stop anywhere in the plain! Flee to the mountains or you will be swept away!”  

And then God rained fire onto the cities of Sodom and Gomorrah. Thick, black smoke filled the air like smoke from a fiery furnace.

(Paraphrased Old Testament story - Taken from Genesis 19:25 ff )

Sometimes in life, you have to grit your teeth, set your face like flint and let the hot tears run cold.

You have to put blinkers on and RUN. Ignore every twinge of agony and crash through every hurdle of despair.

Scream if you have to, but whatever you do, DON'T LOOK BACK. Don't look at what you were, where you've come from, how you felt. Just keep running like nobody has ever run before. 

There's a point in recovery, be it recovery from an addiction or recovery from an Eating Disorder, when to look back is fatal. Just like Lot's wife, to look at what you've left behind is going to destroy you. 
In the case of Anorexia, to stop pushing through the pain barriers, to allow yourself a backward glance is to begin to slow down. Casting that quick over-the-shoulder peek, may not feel like it, but it's going to make your feet like lead, your path like treacle. And all of a sudden, it's got you. 
You were going through hell, you should have kept on going. 
Why go through halfway through hell and turn back?
That's what looking behind you will do.

Suddenly, you're so much bigger. 
You can't feel your bones. 
You can't see the ribs, the dip in the sternum, the ridge of the clavicle, the tailbone, the prominent metacarpals, the pits alongside your knees... 

And you turn
into a pillar
standing in the tunnel
you never saw through.
And there, you stay
disintegrating
grain by grain
bone by bone

until 
you 

'Lot's Wife'

are back
to the place you glanced at
Yet,
when you get there,
it's only 
a 
different
shade
of 
hell.

Counting Calories

You can spot them in a supermarket if you know what you're looking for.

Most obvious, are the tiny ones, well wrapped but with tell tale stork legs rooting them to the floor.
They stand close to the shelf, elbows tucked in, head down, clutching a tin.

They are looking at the nutritional information, specifically at how many kcals per 100g. They pick another tin and do the same. If there was a way of x-raying their mind, you'd see vast amounts of data being computed. Complex comparison tables charting an array of brands, computing calories, converting kilojoules, weight for weight, fat content, fibre.
If they weren't already, most anorexics get good at maths at some point in the descent into hell.

Less recognisable, are the less skinny ones, but don't be fooled... They may have just come out of a treatment facility (goodness, that sounds American!). They may have an Eating Disorder which falls into the mysterious EDNOS category. Not all ED patients are obvious, but an informed eye can spot them a mile off.

One of the

very difficult things about trying to recover from an Eating Disorder, be it Anorexia, Bulimia or something less definable, is that once you know the calorific content of a foodstuff, you can't just 'unknow' it. It's an unfortunate byproduct of many people's illness that they have a head filled with numbers which will, presumably, stay with them forever. After all, knowing the amount of calories in a slice of Warburtons Wholemeal Bread, being able to add up a total when including a medium sized egg, and knowing the amount you're ingesting when you scrape out half a pot of Ski Strawberry Yoghurt, is just as essential as knowing your pin number.

You are not going to forget.
Which, in fairness, just adds to the agony of attempting recovery. 
This morning, deciding on a mid morning snack, was ridiculous. Almost laughable.

Imagine.

I'm hungry. My weight has dropped a lot. I know I must try to up my game.

Snack. Hmm...

 I want chocolate with my coffee, but I know the yoghurt coated fruit snack has 70 less calories than the packet of chocolate... and, it's healthier..!(probably not , but hey... everyone falls for the gimmicky health advertising, right?)

At this stage, the inside workings of my mind look a little like a fantastical fight from a Harry Potter film. Numbers are darting about; variously sized and coloured digits streaking through darkness, pressing their shapes into the soft blackness of your retina. 

"What if I halved that, added that..? Had 2 of those for the 1 of those? This is the equivalent to that... Hmmm... It's still over a 100 calories.
Great".


What do I end up with?
A half packet of salted popcorn.

I know I've had 40 calories.
(And before you feel compelled to tell me, I KNOW the info on these things is only approximate and there may be a 70% margin either way... but something is better than nothing.) Which is a mantra I need to double up on... 
(Irony noted)

Going... Down?

Okay...Title only meaningful to those who are familiar with the old Aerosmith track, 'Love in An Elevator', a good but vastly overplayed track (at one time). My frustration with my one time favourite band has increased as the teenage, rock-chick-love has lessened; all because they sold out to the soft rock market with dribbly anthems like 'Don't Wanna Miss A Thing'.
Apologies. My intentions to write about 'recovery' have been twisted into a rant about my old musical idols.

(Aside) It occurs to me as I apologise, that actually, Steve Tyler and Joe Perry are a long way from being completely irrelevant links to the subject in hand. Both singers have grappled and battled with serious alcohol and heroin addictions. Both know the agonies that come with fighting to be free from that which has possession of your mind.

Addiction comes in so many forms and is something so closely related to the topic of Eating Disorders that it is worthy of some careful thought.
Now however, my mind is too tired to begin debating the fine lines and the overlaps. I regularly feel the urge to write some more informative pieces about Anorexia and Mental Health here but every time I sit down to write, the words sort of ebb away from my (cognitively impaired) mind. 

That's right. 
"Cognitively Impaired". 
The term, used by the experts, to explain the condition of a mind weakened by the effects of malnutrition. 
It makes me wince to accept that this is my current state and yet, all my Anorexic protestations, the frantic scrabbling to deny truth, dwindle in the face of plain, starkly real figures. 
The scales don't lie, although, typically, in the mind of someone suffering with an Eating Disorder, they are incorrect. Not day upon day upon day they're not. 
I'm following that bloody line of decline, and I KNOW it... It's as though I am rendered completely helpless by the power of the Anorexia. 
My daylight head says, 'C'mon! Get a grip! You have to find the strength, the power, to beat this';  In the lonely darkness of the restless night, the more sinsiter voice, 'You'll be lucky if you wake up to see a new day. Your internal organs are tired. Your heart is weak'. 

A young lady who I was an inpatient with for six months, died last week. 
Multiple Organ Failure caused by a long term Eating Disorder.
She was strong, lively, witty, intelligent. 
Her death rocked the ED community I 'served time' with. 

What a TRAGIC WASTE. 

At the same time, my best friend here in ___________  gave birth to a little girl. 
And so, the cycle of life and death continues. Everywhere today and tomorrow and for the rest of time, the mortality drum will continue, beating out it's rhythm on the lives it chooses. I get that. 
What I struggle to accept, is the slow suicide that this illness contributes to this pattern. It's so... horribly pointless. 
Life is to be lived, to the fullest. Jesus said that. And he is not to be argued with. 
Why then, am I, and so many beautiful, talented, young lives, subscribed and obligated to serve this hideous monster?

All answers on a postcard...

A Trajectory Towards Death and Why an Anorexic Can't Bake Gingerbread Hearts

The guy who manages my care here is philosophical as he draws a continuous line through my weight chart. He looks grim faced as he states it is a trajectory towards death. He coins a new phrase, 'the line of decline' and jokes that he will be using that one in the next staff meeting. 
Despite his laughter, I know that he longs for my recovery almost as much as a member of my own family. He has known my parents, my sister (and latterly, me) for seventeen years now. He is as dedicated to wiping out eating disorders as any serious contract killer and although he is has vast acres of experience, his seemingly endless ability to maintain some small glimmer of hope (comments about trajectories not withstanding) never ceases to amaze me. Perhaps it's just that he's missed his vocation as an actor, but he always seems to take me seriously. I just can't count the times when I swear blind that I'll beat it this week; that I'll allow myself to eat a little more; that next weigh in will be different...  I mean it, by the way. My words, when I speak them, are never hollow promises. And yet, week in, week out, I stare disbelievingly at the scales thinking that they can't be right. Not possibly.
Even I would stop believing me.

He has talked to me about going into the day unit. Or back into inpatient for a spell.
I refuse.
He bides his time. 

I have the very best of intentions.

Which brings me to Gingerbread Hearts, which I think I will make for a family friend who is going through a hell I can't imagine.
Simple gesture, right?
Or it is until I think I'll make a batch and have a couple as my allocated snack.

I'll just make them a teensy bit more healthy... No harm in that. 'NORMAL' people do that all the time... It's NORMAL to cut down on the sugar. 
And so I substitute sugar for stewed apple.
I'm sure that it's NORMAL to reduce the fat. I can think of friends who aren't anorexic and THEY would cut down on the butter. Right?
Of course they would. It's NORMAL nowadays. In this health conscious, nutritionally aware age, people ALWAYS use lower fat options.
And so I substitute some of the fat for stewed apple.

Don't try this at home. 

Compromise is the name of the game. 
Trouble is, an anorexic ends up compromising on everything. Trimming off edges until there's nothing left. 
An analogy so apt that it aches.