Pillars of Salt. Square One.

But Lot was so afraid he couldn’t move. So the angels grabbed him by the hand, and they grabbed the hands of his wife and of his two daughters, and they led them out of the city. As soon as they were safely out of the city, one of the angels said, “Flee for your lives! Don’t look back, and don’t stop anywhere in the plain! Flee to the mountains or you will be swept away!”  

And then God rained fire onto the cities of Sodom and Gomorrah. Thick, black smoke filled the air like smoke from a fiery furnace.

(Paraphrased Old Testament story - Taken from Genesis 19:25 ff )

Sometimes in life, you have to grit your teeth, set your face like flint and let the hot tears run cold.

You have to put blinkers on and RUN. Ignore every twinge of agony and crash through every hurdle of despair.

Scream if you have to, but whatever you do, DON'T LOOK BACK. Don't look at what you were, where you've come from, how you felt. Just keep running like nobody has ever run before. 

There's a point in recovery, be it recovery from an addiction or recovery from an Eating Disorder, when to look back is fatal. Just like Lot's wife, to look at what you've left behind is going to destroy you. 
In the case of Anorexia, to stop pushing through the pain barriers, to allow yourself a backward glance is to begin to slow down. Casting that quick over-the-shoulder peek, may not feel like it, but it's going to make your feet like lead, your path like treacle. And all of a sudden, it's got you. 
You were going through hell, you should have kept on going. 
Why go through halfway through hell and turn back?
That's what looking behind you will do.

Suddenly, you're so much bigger. 
You can't feel your bones. 
You can't see the ribs, the dip in the sternum, the ridge of the clavicle, the tailbone, the prominent metacarpals, the pits alongside your knees... 

And you turn
into a pillar
standing in the tunnel
you never saw through.
And there, you stay
disintegrating
grain by grain
bone by bone

until 
you 

'Lot's Wife'

are back
to the place you glanced at
Yet,
when you get there,
it's only 
a 
different
shade
of 
hell.

Going... Down?

Okay...Title only meaningful to those who are familiar with the old Aerosmith track, 'Love in An Elevator', a good but vastly overplayed track (at one time). My frustration with my one time favourite band has increased as the teenage, rock-chick-love has lessened; all because they sold out to the soft rock market with dribbly anthems like 'Don't Wanna Miss A Thing'.
Apologies. My intentions to write about 'recovery' have been twisted into a rant about my old musical idols.

(Aside) It occurs to me as I apologise, that actually, Steve Tyler and Joe Perry are a long way from being completely irrelevant links to the subject in hand. Both singers have grappled and battled with serious alcohol and heroin addictions. Both know the agonies that come with fighting to be free from that which has possession of your mind.

Addiction comes in so many forms and is something so closely related to the topic of Eating Disorders that it is worthy of some careful thought.
Now however, my mind is too tired to begin debating the fine lines and the overlaps. I regularly feel the urge to write some more informative pieces about Anorexia and Mental Health here but every time I sit down to write, the words sort of ebb away from my (cognitively impaired) mind. 

That's right. 
"Cognitively Impaired". 
The term, used by the experts, to explain the condition of a mind weakened by the effects of malnutrition. 
It makes me wince to accept that this is my current state and yet, all my Anorexic protestations, the frantic scrabbling to deny truth, dwindle in the face of plain, starkly real figures. 
The scales don't lie, although, typically, in the mind of someone suffering with an Eating Disorder, they are incorrect. Not day upon day upon day they're not. 
I'm following that bloody line of decline, and I KNOW it... It's as though I am rendered completely helpless by the power of the Anorexia. 
My daylight head says, 'C'mon! Get a grip! You have to find the strength, the power, to beat this';  In the lonely darkness of the restless night, the more sinsiter voice, 'You'll be lucky if you wake up to see a new day. Your internal organs are tired. Your heart is weak'. 

A young lady who I was an inpatient with for six months, died last week. 
Multiple Organ Failure caused by a long term Eating Disorder.
She was strong, lively, witty, intelligent. 
Her death rocked the ED community I 'served time' with. 

What a TRAGIC WASTE. 

At the same time, my best friend here in ___________  gave birth to a little girl. 
And so, the cycle of life and death continues. Everywhere today and tomorrow and for the rest of time, the mortality drum will continue, beating out it's rhythm on the lives it chooses. I get that. 
What I struggle to accept, is the slow suicide that this illness contributes to this pattern. It's so... horribly pointless. 
Life is to be lived, to the fullest. Jesus said that. And he is not to be argued with. 
Why then, am I, and so many beautiful, talented, young lives, subscribed and obligated to serve this hideous monster?

All answers on a postcard...

A Trajectory Towards Death and Why an Anorexic Can't Bake Gingerbread Hearts

The guy who manages my care here is philosophical as he draws a continuous line through my weight chart. He looks grim faced as he states it is a trajectory towards death. He coins a new phrase, 'the line of decline' and jokes that he will be using that one in the next staff meeting. 
Despite his laughter, I know that he longs for my recovery almost as much as a member of my own family. He has known my parents, my sister (and latterly, me) for seventeen years now. He is as dedicated to wiping out eating disorders as any serious contract killer and although he is has vast acres of experience, his seemingly endless ability to maintain some small glimmer of hope (comments about trajectories not withstanding) never ceases to amaze me. Perhaps it's just that he's missed his vocation as an actor, but he always seems to take me seriously. I just can't count the times when I swear blind that I'll beat it this week; that I'll allow myself to eat a little more; that next weigh in will be different...  I mean it, by the way. My words, when I speak them, are never hollow promises. And yet, week in, week out, I stare disbelievingly at the scales thinking that they can't be right. Not possibly.
Even I would stop believing me.

He has talked to me about going into the day unit. Or back into inpatient for a spell.
I refuse.
He bides his time. 

I have the very best of intentions.

Which brings me to Gingerbread Hearts, which I think I will make for a family friend who is going through a hell I can't imagine.
Simple gesture, right?
Or it is until I think I'll make a batch and have a couple as my allocated snack.

I'll just make them a teensy bit more healthy... No harm in that. 'NORMAL' people do that all the time... It's NORMAL to cut down on the sugar. 
And so I substitute sugar for stewed apple.
I'm sure that it's NORMAL to reduce the fat. I can think of friends who aren't anorexic and THEY would cut down on the butter. Right?
Of course they would. It's NORMAL nowadays. In this health conscious, nutritionally aware age, people ALWAYS use lower fat options.
And so I substitute some of the fat for stewed apple.

Don't try this at home. 

Compromise is the name of the game. 
Trouble is, an anorexic ends up compromising on everything. Trimming off edges until there's nothing left. 
An analogy so apt that it aches.

Eating Disorders Awareness - One Truth About Anorexia

I'm conscious that it's National Eating Disorders Week. 
I'm also conscious that much of my writing here has borne witness to my own, very personal, struggle with Anorexia and that, whilst there are many apparent similarities between sufferers, each and every person has their own 'strain' of the illness. 
I recently watched a BBC documentary by a now recovered minor celeb who, having suffered from Anorexia in her youth, embarked upon a quest to find out 'The Truth about Anorexia'. I watched with a  degree of cynicism, (typical of me) because the results of this exploration were pretty obvious from the outset. 

(Aside) As it happened, I was more intrigued the next day, by the widespread and vicious backlash on various discussion forums, where anorexics ripped the programme, and its celebrity 'investigator', to shreds, claiming that she obviously hadn't been a 'proper' anorexic! 
That would be another topic!

One thing that I've learned from the large number of patients in the treatment centres I've been in, is that there IS no single 'cause' of anorexia. There can be no 'getting to the bottom of it' because it's as shape shifting as the virus for the common cold.  

You think you can spot an anorexic? It's the legs that give it away right? The two pins that, by some miracle, are holding them up. And the face. The way their eyes sink into the skull, dark skin sagging at the ridge of bone which runs from the top of their cheek to the deep line around the mouth.
The clothes that hang baggy off their shoulders. Tired, tiny arms, narrowed, fleshless at the tops. 
Yep. Definitely.
As I type, I sit in Cafe Nero. Couples sit sipping valentines coffee. A barrista sweeps conscientiously, moving the easel with the 'Hot Soup' ad, concentrating on each swish across the tiled floor. A young man sits at his laptop, looking over dark glasses at intervals. 
I'm drinking a one shot Americano with skimmed milk, hot. My make up is immaculate (last time I checked anyway). Subtle grey eyeshadow, a touch of mascara, a little blush. I'm about seven stone; that's forty five kilos to the metric crowd. My clothes are an eight. I've just eaten a Kit Kat. 
Nobody knows I'm anorexic. 
Nobody can see that beneath the recently acquired flesh, a cold skeleton howls, like a forgotten child. Nobody can hear the whispers, the taunting desire to have one of the brownies that the rosy-glow girl to my right is enjoying. Nobody can see the rapid calculations, the figures flicking up and down as I add, divide, add, multiply; 107 calories = my biscuit, 100ml of skimmed milk =  43Kcals x 2 plus a bite of cereal bar. It's too much. How can I compensate at dinner? 
Nobody sees the anorexic who knocks around in a body too large.
I may be sitting near another at this very moment.

I think I've digressed somewhere. 
I set out to illustrate the fact that the one truth about Anorexia I know is that everyone's illness is different.

During inpatient treatment people presented with dangerously low BMIs. But how they got to that point varied. 
Okay, we all have an issue with food. But some anorexics are calorie obsessed, whilst others are more preoccupied with the fat content in foods. 
Some are addicted to exercise (myself included) and can hardly sit down for more than ten minutes without having to get up and do press ups or squats; others can happily lie on a sofa for hours and sleep. 
Some patients have buggered up their system by taking laxatives and/or making themselves sick. Others won't take a tablet, even for a migraine.
Some quake at the sight of a potato because carbs are sworn enemies, others are too afraid to eat a carrot because it has somehow become a 'fear food'. Still more are terrified of dairy products, not touching milk or cheese for years.
I met patients who will 'water load' to throw their weight (water loading is a common but dangerous behaviour practised by eating disordered patients who consume vast quantities of water in order to fake weight gain). Then again, some people are so obsessed with knowing their actual weight that they will wear exactly the same clothes to be weighed. 
Some anorexics are so scared that their body will absorb fat that they won't use cream shower gels or moisturiser on their skin. 
I've met anorexics who drink copious amounts of alcohol, whilst others won't even sniff it.
When I was at my worst, I couldn't drink coffee for fear that it contained hidden calories. I couldn't trust the calorie content on certain labels and so I ruled out anything which I deemed to have 'too few calories to be believed'.
Some people can't watch food programmes, others read cookbooks obsessively and liked nothing better than to cook a three course meal that they could never eat.

Eating Disorders may present similarly, but no one sufferer has the illness in quite the same way, which may be why they are so difficult to treat and why they are still so widely misunderstood.

No rest... for the Anorexic.

BMI 16.8
42 kg

This is hard.
I'm growing. More, I've GROWN. 
(Groan.    I do.)

It's getting easier to eat the food on the unit.
I'm not feeling the intensity of the agony I was. I rarely end a meal and feel like hanging myself from the shower rail (which, incidentally, is magnetic for just that reason).

Now it's OFF the unit that the problems occur.

I have weekend home leave fortnightly. 
It would be weekly if I didn't lose weight every time.
I TRY. I really do. But I panic and I walk around a lot and eat fairly 'light' meals and feel triumphant if I manage to keep my head so busy that my body 'forgets' that it has missed a snack.

Exercise remains a HUGE issue for me.

I NEED to get past this.

As I was on one of my walks the other day (I'm allowed three twenty minute walks nowadays) it occurred to me that I can restore my weight to a BMI of 20 - 25 and still be a slave to exercise, a slave to the thoughts which perpetually torment me the minute I have to sit down for a second longer than 'rest' is enforced for. 
I can restore my weight without ever challenging myself to eat pizza or drink wine or eat ice cream or pasta or ciabatta or gnocchi or avocado or any of those things that terrify me.

I could well walk out of this hospital, a picture of health; the epitome of 'normal'; cheeks glowing, hair shiny, eyes sparkling; vitamin B, C and D radiating from every pore... and still be utterly horrified at anything more than a sprinkling of carbs across my week, and COMPLETELY unable to even contemplate something like takeaway.

I HAVE to challenge myself with these foods or I will never overcome the fears I have.

And yet.

I feel helpless when it comes to even sitting in the hairdressers for a couple of hours. 
Today it nearly made me cry that I had to sit down for so long.

If I could kill this illness, I'd want to torture it first.
Torture it like it tortures me and all the girls here.

It's an Inpatient's Life

I began the following post on Day 10 of treatment.
I am completing it on Day... Thirty five..?
What am I still doing here?
I wish I knew.

Day 10

Ten Days after admission and I am just getting past the numbed haze of the first few days as an inpatient in an Eating Disorders Unit. I want to be positive and strong and cheerful but in reality, there are few words to describe the abject misery of the long, closely monitored, periods of 'enforced rest', that characterise the treatment of undernourished patients.

As a newbie, I have been placed on 'Level One Obs', a nursing term meaning a patient must be 'checked on' every fifteen minutes.

Words fail to describe the torture that accompanies the lack of sleep these 'checks' entail.

Prone to insomnia, I think I managed two hours last night. Sleeping medication has been prescribed but I am loathed to use it every night, meaning that I am cultivating an unhealthy dread of long, 'every other night,' shifts. Tossing and turning, I sweat on a rubberised, wipeclean hospital mattress, under a rubberised, wipeclean, hospital duvet, tortured by unspent energy and the cruel whisperings of the relentless Anorexic voice.

I get up and shower in the wet room, cursing the ever growing pool of lather which collects around the plastic drain. I hope to be on time for the discretionary extra glass of water that is allowed in a narrow, fifteen minute window, in the mornings.

Outside the clinic room door, a queue of barely rested, skeletal patients in varying states of undress, forms. A small plastic punnet of pills is pushed across the trolley. I swallow the seven tablets in two gulps. At least this is the chance for a bit more water. (Restricted fluids is part of the treatment and they swear that what we are allocated is 'enough').

Thankfully, this is as close to One Flew Over The Cuckoos Nest as this place gets.

Breakfast is at 8.30 and comes with juice, but if you complete your meal within the allocated half hour, you are allowed an 'extra' water, tea or coffee.

Two minutes over and you're fucked.

At the table, I cast my eyes around, looking to smile encouragingly at my comrades who sit, eyes cast down, pushing tiny forkfulls of fattening foods into fear filled mouths.

Cheek bones clench painfully, accentuating the grooves around their mouths as they chew on branflakes and then toast.

I haven't eaten toast for about three years.

As a carbohydrate, it terrifies me.

Day 35

I was thought I'd be here for four weeks.

Come Thursday, it'll be five.

Last thursday I reached a BMI of 14.1 and weighed five stone 8 pounds. It feels like such a lot.

I've had time to get to know the ropes a little, although, it doesn't make them any less painful to climb.

I won't continue with a blow by blow account of the days here... Suffice to say that, when you are assessed and deemed  'cognitively well enough', you are allowed to join certain 'groups' which take place twice a day, both an hour long.

Days are structured around the three meals and three snacks. Each of these is followed by a period of 'enforced rest', during which time we have pulse rates, blood pressure, temperature and sats done.

I can't fault the care here. The team are outstanding, though there are many times when I would gladly escape their attentive listening and their constant presense.

The worst thing about this place (aside from the obvious and the ensuing weight gain) is the complete lack of privacy.

The doors to the bedrooms have little windows and staff patrol the corridor at regular intervals, day and night.

I am currently allowed out for two, 'unaccompanied' 5 minute walks.

You can imagine the pace of these.

Twice a week we are woken at six for weigh in. I'm usually the first because I've been awake for hours, sweating on the rubberised hospital matress, which still makes me boil in my own skin despite the fact I have a blanket and two sheets seperating the rubber and my body.

We're spared little dignity as a member of staff stands outside the slightly opened bathroom door, waiting to listen to us pee so they know that the figure on the scales is a reflection of our 'true' weight.

No room for stagefright.

No room for cheating either, as we strip down to bras and knickers to stand on the scales.

Mondays also entail enduring one of an assortment of unhelpfully similar acronyms; a CPM.

Daunting to even the most seasoned of inmates, this requires that you sit before a selection of senior team members who feedback on your progress, sanction (or not) each of the three requests you are allowed to submit for consideration, and discuss the efficacy of your mealplan.

Mondays are rarely dryeyed days for the majority of patients.

I have all that to look forward to in the morning.

My stomach churns as I type, unable to digest the huge portion of ice cream and rhubarb crumble, unable to face the numerical realisation of my inevitable weight gain, and unable to face the impending bowl of bran flakes that lies in wait for me at nine thirty this evening.