Closed For Business

Just a note to close this blog and redirect to the site I am now using.

I think I have felt (for a long time now) that some of the stuff in this blog is just so far behind me that it is time to kick up the dust and move to a slightly different landscape.

But I miss some of the visitors I had here, and so I leave a trail behind me!

If you are at all interested, my newer blog is called LastThingOutTheBox
and it can be located here

Thank you for sharing some of the aspects of my journey.

The Needle Returns to the Start of the Song...

... And we'll all sing along like before...
Goes the song.

Irritating when your internal MP3 is stuck on the same track and no matter how hard you shake it, it won't stop. Trying to get away from it is just about as effective as trying to go on holiday without your head. And don't we all wish we could do that at certain times in our life. Take enough hallucinogens and it's possible, but they're not exactly cost effective and the insurance you'd take out is ridiculous.
No.
No way around it but to play enough music to flush this one out of the system.
This particular musical ghosting is a song by... (I pause, not for literary impact, but because my memory function is compromised by malnutrition, although, it could just be that my powers of recollection are as shite as they ever were)... 
Where was I? Okay. (Breathe) The music... 
It's a song by Del Amitri (who for some unknown reason, I always confuse with Dire Straits). An especially depressing number, aptly named, 'Nothing Ever Happens'. For those who like to listen, go ahead.
Indulge.



I guess it's the theme of repetition that lends the song to my worn out inner ears; and for good reason.
On Monday, I retrace my tracks to the unit where it all began. Back to the beginning.
March 2011, the agonies of which, I captured on this very blog.
Yep.
That's right.
Monday will see me standing outside the gates of hell itself.
And to be clear, it's not that nothing will have changed, because I have. My illness has. My way of thinking has. Three years of various treatments, including seven months as an inpatient, and rather a lot of medication, have put me on a markedly different rung of the ladder.
What is hard, is that it's the same hole. The same darkness. And, pretty much the same distance to the light.
Hence, 'we all sing along like before'.

I want this to work... which means that I will have to work. Very hard. 

It will be bearable, though it won't feel it.
It won't kill me, though the process of recovery will involve the slow death of the illness, so it will feel like it.


In all the darkness, I must somehow manage to fix my eyes on a light I will not always see. 

In order for recovery to take place, you have to believe that, just as there is always a sun and a moon, there is a new life beyond, and there is a different person behind, the illness / addiction. 
The courage it takes to make this leap of faith is immense and for me personally, I don't know if I can sustain it. 

Benefits - As IF.

      6 years ago I was a valued colleague. 
I had a good career, bright prospects and a good wage. 
I had a pension. Good holidays. 
I was contributing to society. 
I was teaching English and social skills to young, disaffected teenagers who were so often in need of firm boundaries; steady, fair reliable adults who could help to rebuild some of the trust and respect that they lacked. 
I was passionate, respected, consulted. 

      How is it then, that 6 years on, this same young woman sits with her support worker, filling in a form for Disability Living Allowance?
How did she go from the shiny, high gloss teacher to the redundant, matt -finish patient?

      The change was staged, steady. I was stripped, planed, sanded and my identity fell away... disintegrated, replaced by the illness...  
Suddenly, I'm not 'a Teacher' anymore. ("Hi! I'm a teacher too! What do you teach? Me? Oh I do Key Stage 3 and 4 English"). 
Not anymore. 
Now I'm: 'an Anorexic'. 

      I  don't have an income. I've lost my career. I don't have holidays.
Days slip past me. I am overwhelmed by small things. Most days end without ceremony. I have achieved nothing. Thousands of hours and nothing to show. 

      Overwhelmed by the sheer magnitude of what this section of the form seemed to demand, I left it blank.
And so my Support Worker wrote a few clinical / medical comments.

My claim for benefit will be submitted today. 

But really...

...benefits..? 

I'm trying so hard to see anything that would justify the use that word.

Pillars of Salt. Square One.

But Lot was so afraid he couldn’t move. So the angels grabbed him by the hand, and they grabbed the hands of his wife and of his two daughters, and they led them out of the city. As soon as they were safely out of the city, one of the angels said, “Flee for your lives! Don’t look back, and don’t stop anywhere in the plain! Flee to the mountains or you will be swept away!”  

And then God rained fire onto the cities of Sodom and Gomorrah. Thick, black smoke filled the air like smoke from a fiery furnace.

(Paraphrased Old Testament story - Taken from Genesis 19:25 ff )

Sometimes in life, you have to grit your teeth, set your face like flint and let the hot tears run cold.

You have to put blinkers on and RUN. Ignore every twinge of agony and crash through every hurdle of despair.

Scream if you have to, but whatever you do, DON'T LOOK BACK. Don't look at what you were, where you've come from, how you felt. Just keep running like nobody has ever run before. 

There's a point in recovery, be it recovery from an addiction or recovery from an Eating Disorder, when to look back is fatal. Just like Lot's wife, to look at what you've left behind is going to destroy you. 
In the case of Anorexia, to stop pushing through the pain barriers, to allow yourself a backward glance is to begin to slow down. Casting that quick over-the-shoulder peek, may not feel like it, but it's going to make your feet like lead, your path like treacle. And all of a sudden, it's got you. 
You were going through hell, you should have kept on going. 
Why go through halfway through hell and turn back?
That's what looking behind you will do.

Suddenly, you're so much bigger. 
You can't feel your bones. 
You can't see the ribs, the dip in the sternum, the ridge of the clavicle, the tailbone, the prominent metacarpals, the pits alongside your knees... 

And you turn
into a pillar
standing in the tunnel
you never saw through.
And there, you stay
disintegrating
grain by grain
bone by bone

until 
you 

'Lot's Wife'

are back
to the place you glanced at
Yet,
when you get there,
it's only 
a 
different
shade
of 
hell.

A World Beyond Our Imaginations

…Maybe there IS. Maybe there isn’t.
Either way, if we don’t allow ourselves to entertain the possibility that there COULD be a different way of living life, and there MIGHT be a different way of thinking about things, we will never know.

I’m not the hippy type. I promise.

I don’t hug trees, I don’t take herbal hayfever tablets, I ‘m not a vegetarian, I’m not a member of Greenpeace, I don’t do yoga, I don’t wear clothing woven in South America and I’ve never tried Arnica.

But (there had to be, right?) BUT, I do believe that we get into certain patterns of thinking. Even scientists report that there are certain ‘neural pathways’ in the brain, which is a technical way of saying that our thoughts get used to travelling along particular alleyways, leading to familiar places, default settings, if you like. Humans are creatures of habit, brains follow suit.

What are the implications of all this for those of us in recovery?

A friend recently told me that, although they’d like to believe in something bigger, they just COULDN’T and I sympathised because I, of all people, understand doubt, cynicism and unbelief. I battle it everyday in order to keep the faith I DO have, alive. Later, I returned to our conversation in my mind and came to the realisation that the word ‘couldn’t’ would probably act as a barrier in her mind.

To be truly open to something, like the possibility of recovery, is to allow it to rattle round our minds without any thing as concrete as ‘words’ attached to it. Just as if you are rolling a ball round a clean floor; no mud, no dust, nothing to stick to it…

Sometimes, I wonder if it’s in this act of ‘allowing’, that hope filters in… unseen… unheard and then… suddenly:  there.

Opening up old wardrobe doors. No thoughts. No can’ts, cans, couldn’t, wouldn’t, must, should or shouldn’ts.  Just opening something up.

It has to be worth a try.

Speaking of Normalcy...

 

I couldn't resist taking a cheeky snap of this mug when I saw it in a shop window.
I'm on holiday in Cornwall; land of smugglers and sea shanties and shipwrecks and ancient tales of hidden pirates' plunder. It's now home to thousands of artists (on account of the beautiful, flat light and the sheer sense of SPACE). 

Cobbled streets, winding lanes, laid back locals and sun soaked flora. The essence of Cornwall. Pints of real ale, Cornish pasties, and fish and chips fresher than any you'd ever find. The streets here are lined with gift shops galore; the type that you bump around, stroking pretty wooden shapes, painted in low tone shades - willow green, dusky pink, dirt track yellow...
It's as far South West as you get in the UK, and the sun sets here last. Days feel long and it's endlessly beautiful. 

I'm on a family holiday. The first for years.

I think we're past thinking we're a nice normal family. With two anorexics, an anxiety disordered mother, a control freak dad and another sister who, believe me, has her own scarring, we're hardly 'normal'. I'm glad we can (sort of) admit it (bar my mother). I'm glad we can (sometimes) laugh about it (almost). But, I remember a time when we couldn't. 

Many years ago, when the values were set differently, when the pride was stronger and the pain - rawer; we were  bound and gagged for fear that someone might see we weren't the "nice, normal family" that popped up, smiling and glossy and beautifully 'normal'.

You might ask the question, 'what is normal?'in an attempt to deny that there's any such thing. 

In my experience, those who deny 'normal' (mother), are either defending their hidden non-normalcy, or, they're just not weird enough. 
If the family is a piece of wood, pain is a plane, relentless at task with which it's charged. And the shape we're in now comes from years of scraping and turning and sanding and smoothing. And we're still very much a rough hewn hunk of wood, but at least we're not still in the denial phase of 'normal'. 
To attempt comparison is ridiculous... yet in some strange way, it's more painful to be at that end of the process. I still bear scars from smothering hands that insisted that we were 'normal'.

Facts and Figures. It's All or Nothing

Three Months - One Stone (6.3kg)  = Slow Downward Trend

Based on current rate

BMI 16.1
- 1 Stone  (3 months)

 = BMI  13.6 by end of August

I'm trying so hard to keep fighting but I'm doing a really intensive teaching course (English as a foreign language) and I'm finding it very hard to focus on both the input sessions, assignments, lesson planning and teaching, and the battle against Anorexia. 

I must write here more. The intention is there but I find the drive towards perfection kills my ability to even begin. 
This is so typical of somebody who has 'all or nothing' thinking. 

Eating Disorders Awareness - One Truth About Anorexia

I'm conscious that it's National Eating Disorders Week. 
I'm also conscious that much of my writing here has borne witness to my own, very personal, struggle with Anorexia and that, whilst there are many apparent similarities between sufferers, each and every person has their own 'strain' of the illness. 
I recently watched a BBC documentary by a now recovered minor celeb who, having suffered from Anorexia in her youth, embarked upon a quest to find out 'The Truth about Anorexia'. I watched with a  degree of cynicism, (typical of me) because the results of this exploration were pretty obvious from the outset. 

(Aside) As it happened, I was more intrigued the next day, by the widespread and vicious backlash on various discussion forums, where anorexics ripped the programme, and its celebrity 'investigator', to shreds, claiming that she obviously hadn't been a 'proper' anorexic! 
That would be another topic!

One thing that I've learned from the large number of patients in the treatment centres I've been in, is that there IS no single 'cause' of anorexia. There can be no 'getting to the bottom of it' because it's as shape shifting as the virus for the common cold.  

You think you can spot an anorexic? It's the legs that give it away right? The two pins that, by some miracle, are holding them up. And the face. The way their eyes sink into the skull, dark skin sagging at the ridge of bone which runs from the top of their cheek to the deep line around the mouth.
The clothes that hang baggy off their shoulders. Tired, tiny arms, narrowed, fleshless at the tops. 
Yep. Definitely.
As I type, I sit in Cafe Nero. Couples sit sipping valentines coffee. A barrista sweeps conscientiously, moving the easel with the 'Hot Soup' ad, concentrating on each swish across the tiled floor. A young man sits at his laptop, looking over dark glasses at intervals. 
I'm drinking a one shot Americano with skimmed milk, hot. My make up is immaculate (last time I checked anyway). Subtle grey eyeshadow, a touch of mascara, a little blush. I'm about seven stone; that's forty five kilos to the metric crowd. My clothes are an eight. I've just eaten a Kit Kat. 
Nobody knows I'm anorexic. 
Nobody can see that beneath the recently acquired flesh, a cold skeleton howls, like a forgotten child. Nobody can hear the whispers, the taunting desire to have one of the brownies that the rosy-glow girl to my right is enjoying. Nobody can see the rapid calculations, the figures flicking up and down as I add, divide, add, multiply; 107 calories = my biscuit, 100ml of skimmed milk =  43Kcals x 2 plus a bite of cereal bar. It's too much. How can I compensate at dinner? 
Nobody sees the anorexic who knocks around in a body too large.
I may be sitting near another at this very moment.

I think I've digressed somewhere. 
I set out to illustrate the fact that the one truth about Anorexia I know is that everyone's illness is different.

During inpatient treatment people presented with dangerously low BMIs. But how they got to that point varied. 
Okay, we all have an issue with food. But some anorexics are calorie obsessed, whilst others are more preoccupied with the fat content in foods. 
Some are addicted to exercise (myself included) and can hardly sit down for more than ten minutes without having to get up and do press ups or squats; others can happily lie on a sofa for hours and sleep. 
Some patients have buggered up their system by taking laxatives and/or making themselves sick. Others won't take a tablet, even for a migraine.
Some quake at the sight of a potato because carbs are sworn enemies, others are too afraid to eat a carrot because it has somehow become a 'fear food'. Still more are terrified of dairy products, not touching milk or cheese for years.
I met patients who will 'water load' to throw their weight (water loading is a common but dangerous behaviour practised by eating disordered patients who consume vast quantities of water in order to fake weight gain). Then again, some people are so obsessed with knowing their actual weight that they will wear exactly the same clothes to be weighed. 
Some anorexics are so scared that their body will absorb fat that they won't use cream shower gels or moisturiser on their skin. 
I've met anorexics who drink copious amounts of alcohol, whilst others won't even sniff it.
When I was at my worst, I couldn't drink coffee for fear that it contained hidden calories. I couldn't trust the calorie content on certain labels and so I ruled out anything which I deemed to have 'too few calories to be believed'.
Some people can't watch food programmes, others read cookbooks obsessively and liked nothing better than to cook a three course meal that they could never eat.

Eating Disorders may present similarly, but no one sufferer has the illness in quite the same way, which may be why they are so difficult to treat and why they are still so widely misunderstood.

The writer of this blog...

... has been in hell for the past two months...

perhaps more.

My silence here has been down to the simple fact that my head is mostly a jumble of sounds which don't seem to translate into anything as neat and orderly as WORDS.

It even sounds far fetched to me, but it's one of those 'you just had to be there' things. 

Unless you've been in my shoes (and stomped round and around the same hospital building three times a day for twenty minutes 'fresh air') my ridiculously dramatic sounding excuse for silence just won't wash. 

(Cue Persil ad...)

No really. 

Prompted by a friend to describe what it's like to be restoring weight, I wrote that it's like...

...having your skin peeled off in long strips, and then your body being rolled around on a grater, with pressure being applied in varying degrees in different places

and sometimes

it makes you bleed purple rivers in hidden places

or mouth short 

breathless 

cat-screams

and other times

anger-fear juices inwardly curdle

with an inverted agony

that leaves me folded on the floor

pressing cold fists into my eyes

to stem the red pain seeping out of my sockets

and in me, a mighty snake twists

my colon, a strangled tree trunk 

and the more I eat

the more it turns and thrashes 

against the raw muscle tubing 

 ***

Okay. So every word is wringing with pubescent angst and perhaps the silence, if not golden, is at least preferable to the torture - jargon. 

But this is the truth of it.

This is how it feels for my anorexic head to be growing a body.

And no amount of Seroquel or Pregabalin or Duloxetine is going to make it okay. 

It's not supposed to be a joyride, this recovery lark... but six months in... it hasn't got easier... just...
... different. 

Hope Is A Thing With Feathers

If life is a ragged nail, chipped and broken by the most menial of tasks, poetry is a glass file, reshaping and smoothing... 

American poet, Emily Dickinson is one of the most well known writers of the nineteenth century. 

All too familiar with the alternating pain and numbness of depression, and the paradoxical feelings of safety and loneliness which come from isolation, she poured her thoughts into poem after poem and, famously, a vast number of letters.

In what I consider to be one of her most beautiful verses, she uses a bird as a metaphor for hope. The poem reflects the simple innocence of hope, making the point that whilst it may appear as fragile as filigree, hope can endure extremes, harsh storms and the most bitter winds.

I made this poster for my room here in the unit. 

I look at it morning and night, every time I feel that hope may have perished...

I pray for Dickinson's words to be true for me.

“Hope” is the thing with feathers 

BY EMILY DICKINSON

“Hope” is the thing with feathers -

That perches in the soul -

And sings the tune without the words -

And never stops - at all -

And sweetest - in the Gale - is heard -

And sore must be the storm -

That could abash the little Bird

That kept so many warm -

I’ve heard it in the chillest land -

And on the strangest Sea -

Yet - never - in Extremity,

It asked a crumb - of me.

An Announcement

Being as my BMI is now below 13, I have been referred for inpatient treatment.

I go for assessment on Tuesday, admission on Thursday.

Anorexia is a thief like no other.

It steals my holiday. My choices. My words. My mind. My relationships. My chances. My sleep. My health. My bones.

And that's not even the half of it.

I'm numb and very, very tired.

Today...

... tears.

And I'm sorry that I can't feel stronger. I choose to be positive and to smile and to keep cheerful, and yet, alone, I dissolve. Head in hands. Desperation trickling through my, apparently, 'skeletal' body.


I was informed yesterday that I'm 1 kilo off being admitted. I can't have that. Not when I've just begun a phased return to work... not when it'll cost me my job... not when I want to do this so, so badly.


So why then, when I just have to put on a few pounds, am I battling the urge to exercise?


It's madness this illness. A bulging, black mass somewhere in the brain. It seeps and creeps and pushes into spaces, forcing itself against walls of reason and clarity.

Blue Monday

Incredible. 
It's nothing short of incredible.
And I, the biggest cynic regarding all things 'Pseudo Science', am pushed towards AWE by the fact that, until I overheard a conversation in a local supermarket, I had no idea it was 'Blue Monday', or that such a phenomena existed.


It's practically against my religion to expand on such things, such is the level of distrust (and possibly even... disgust) of anything vaguely pseudo scientific. In this case however, I'll make an exception.


I woke early on Monday morning to find Anorexia squatting at my bedside bed, waiting patiently for a clamour of stupefying chants to fully penetrate every square centimetre of my being. 


Flatly refusing to succumb to the temptations offered, I ran through my normal routine and ate my porridge and apple, pleasantly distracted by Chris Evans and a large general knowledge crossword.


By midday however, the Anorexia had stepped up it's game and I, like a swatted-at wasp, zipped from cupboard to fridge to freezer to cupboard to fridge to freezer, unable to make a decision about food, furious at myself for being hungry and confused by the sums and figures coursing through my head.
And so I have nothing.
Or bits of food.
Or nothing.
Or bits.
And I don't know anymore.


I end up kneeling against my bed, hands pressed against my eyes, thinking of nothing at all.
Because that's the only way I can find comfort in a pain that is almost physical.
Ripped apart. Visceral pain.


Later, in a paler shade of darkness,  I forced myself to drive down to the supermarket, where I stumbled round in a malnourished daze.


"They say it's the worst day of the year today", the man said to the woman as he patted her back sympathetically.


Hopeful for something, ANYTHING, to explain the day, I googled it.
To find this.

The date for ‘the most depressing day of the year’ was first identified by Cliff Arnall, formerly of Cardiff University, marking the symbolic time in January when people suffer from a series of combined depressive effects.

His date was devised using the following mathematical formula:

The model was broken down using six immediately identifiable factors; weather (W), debt (d), time since Christmas (T), time since failing our new year’s resolutions (Q), low motivational levels (M) and the feeling of a need to take action (Na).

The formula calculates that Monday 16th January 2012 is the worst day of the year, when the Christmas glow has faded away, New Year’s resolutions have been broken, cold Winter weather has set in and credit card bills will be landing on doormats across the land – whilst the January pay-cheque is still some way away.

The formula started a chain of events which led to the designation of ‘Blue Monday’ – the third monday of January.

Believe it or not... But it was certainly my worst day in a very long time.

Update

To my addled, heavy - saddled mind, the increasing pressure to write a blog post has borne a wormish hole through my head and I can't sleep properly until I have, at least, been here and written some words.

I don't even think it matters what they are any more; just so long as I break the silence.

What follows is a week's worth of situations I have seen myself in:

 

I've been scooped and planed and smeared with gel for an ultrasound on my liver, which continues to register stupidly high ALTS in a determined display of disapproval.

I attended a weigh in appointment at the unit, which revealed another small drop in my weight. Again, I was told I was unable to 'do' this and that I needed to be back in the treatment centre. 

Again I refused, knowing that they have no real grounds for threats whilst my weight is above 31.7kg / 5 stone / 69 lb... Today it stands at 34.0kg. I am incredulous (again and again and again) at the way this illness can CONVINCE me that I have put on at least 3 pounds every week. I can even SEE it.

Or not.

I saw The Woman, having completely forgotten to attend last week's session.

She has noted that lately I seem unable to allow myself a 'whole' of anything. I can't allow a whole packet of cereal, a whole apple, a whole sweet, and (judging by a regular pattern of totally unintentional lateness) a 'whole' session of therapy. (She doesn't appear to 'DO' "unintentional". Apparently (assume cynical tone) apparently its all to do with the unconscious mind.

Needless to say, my failure to even show up for a session was duly interpreted in the light of such analytical theory rather than the more truthful fact that I'm fairly malnourished and my brain isn't quite functioning as it should be.

The Woman has continued to be my place of safety.

Today we discussed Something Very Difficult (very briefly). I let it slide across me rather than through me.

We both know it was enough for now.

Tomorrow I am going away for the weekend with two friends.

We've rented a little cottage very cheaply and though I have questioned whether I can possibly enjoy a break from my safe but painful routine, I am now quite excited by the idea that I am doing something 'normal', with normal people, in a normal situation.

Normality is an underrated state, in my opinion.

Words being available, I will make some attempt at relaying just how successful I am in my attempt to join this fleeting dance with something outside of my world of body and battle.

Wish me luck.

Declaration at Dusk.

Still the battle rages,

And though the field dark red,

Rather now the agony,

Than live already dead.

So 'til the foe is silent,

Ignoring pleas of aching limb,

Through soul's dark night of madness

My heavy sword shall swing.

***

I'm fighting so hard that the mental exhaustion of the constant clash of thoughts, matches, even outweighs, the physical exhaustion of the eating disorder. 

At times, the swords swing so fast that I can't recognise whether it is me, or the Anorexia, who has won the round. 

Two things I know for sure: It hurts like hell 

and 

it doesn't stop for a minute in any waking hour.