Closed For Business

Just a note to close this blog and redirect to the site I am now using.

I think I have felt (for a long time now) that some of the stuff in this blog is just so far behind me that it is time to kick up the dust and move to a slightly different landscape.

But I miss some of the visitors I had here, and so I leave a trail behind me!

If you are at all interested, my newer blog is called LastThingOutTheBox
and it can be located here

Thank you for sharing some of the aspects of my journey.

Anorexia Kills

For whatever reason, I feel the need to preface this post with a declaration that I do not buy the Daily Mail. Finding it, all too often, a thinly veiled excuse to propound nationalistic views, I frequently have to remind readers that the world is not really that bad a place unless they believe all they read in this trussed up tabloid.

I was, however, drawn to the full page article about a long suffering mother, who, five years after her daughter’s tragic death, has made the decision to release the girl’s diaries. Diaries that record the tortured journey of Loredana Verta, a bright, talented sixteen year old, who was dead within three years. Heart attack.

Rightly or wrongly, some of  this young sufferer’s innermost thoughts and feelings are laid bare in newsprint for all to see.

The workings of this girl’s mind are utterly consumed by the illness. Her writing is littered with scribbled self loathing, capitalised screams of  “I HATE ME… I HATE MY BODY”.   Most teenagers feels like this at some point. Hormones, skin, peer pressure, perfection culture, fashion… It’s all there to taunt the aspiring, spot laden, hormone raging teen.

Except Loredana’s thoughts are all centred on weight loss and weight gain and wrongly perceived fat.
To my mind, what is more haunting than the poisonous self hatred, the desperation, the pleas to God and the cries for help, are the words of a grieving mother, who says,

“Lorry thought she could live with the condition – that as long as she was thin, she would be OK. She didn’t realise that anorexia is a deadly disease. It is a killer”.*

For long term sufferers, ‘old hands’,
 Anorexia can be so ingrained, so deeply habitual, that we forget that it is something UNnatural… an invasion. It becomes like Stockholm Syndrome… It’s is our natural fall back position.

It KILLS.
Let’s get real.
It is deadly.

We think it won’t ever happen to us, and yet, why wouldn’t it? It killed Loredana in just THREE years.

Of all psychiatric disorders, Anorexia is the biggest killer. TWENTY PERCENT of sufferers die prematurely.^

I hear my wake up call.

Can you hear yours?

* Emphasis is mine
^ Statistics according to B-EAT

Hole In The Wall God

Although I rarely mention it in my writing here, my faith is one aspect of my life which I think would fundamentally change the very essence of my being were it to completely disappear. In truth, my spiritual journey, much like my therapy journey, has been a challenging mixture of blindness and revelations; of soaring and stumbling; and of denials and acceptances.

Proud of this shot! 

I've been in places of unshakeable certainty, unable to understand how anyone could ever question such a tangible God. In later life, there have been times when I've swallowed bitterly as depression and the weary despair and fatigue that accompanies it, flecked inky pools of indifference and doubt across any conviction that I once had.

At this point on the journey, I stand on a different mountain, overlooking a very different landscape.
A part of me draws some strength from the inner sense that God stands with me.
This acknowledgement of 'a higher power' seems to play a crucial role in recovery. AA refer to the 'higher power', as do a range of other successful addiction recovery programs; the theory being that as human beings, we are often weak willed and for all our good intentions, cannot free ourselves from the power of ingrained behaviours and habits. We need to draw on a strength that is not 'from' us, but is outside of us.

A part of me worries as I consider how God is referred to in the 12 step programs.
Does it not all sound a little bit 'God-as-hole-in-the-wall' ish?
I'm not sure.

What I do know is that right now, I find myself knocking on heaven's door morning, noon and night, asking for supernatural strength with which to fight the Anorexic howling which coarses through my mind interminably.
I pray as I sit down to eat my snacks, my meals  and as I battle the urges to spit my food out after chewing it.

Groundhog: Eat My Heart Out

The cycle of change seems perpetual and impossible to break out of.. The whispering of the Anorexia is so much louder than the voice of reason and recovery. The stupidest thing is that I fall for it time and time again. After years of the same tiresome thoughts and feelings; years of the illness telling me that I am piling on the pounds; that I am 'out of control' and that I look 'normal', I am STILL shocked when the scales disprove it. I am STILL more surprised by the hard facts, figures that plainly contradict the lies. 

Anorexia: Disease or Lifestyle?

Monday’s Telegraph newspaper marked the beginning of Eating Disorders Awareness week with an article about ED websites: More specifically, ‘Pro Ana’ sites.  (For the uninitiated, these sites are sites set up to encourage those who want to starve themselves. They share tips and tricks about hiding food, fighting hunger, effective purging, dealing with interfering parents / loved ones and often sporting photographs of skeletal bodies to give ‘thinspiration’ to followers).I skimmed Sarah Rainey’s article , too tired of the topic to want to engage with the politics and the emotion held between the lines of the pro ana blogger, the parent of a (nother) very bright, talented ‘whole life ahead of her’ dead Anorexic and ED organisations. One thing however, leapt out at me.This:“Anorexia is a lifestyle, not a disease”.It’s something I’ve heard many times in various forms and generally from sources who, clearly, have no understanding of the pathological nature of Anorexia. Without wishing to state the obvious, I find the implications of the statement upsetting because it embodies the attitude that somehow, Anorexia is a choice one makes. For me, this is an absurd idea. However, as I have previously tried to explain (here), I think there are different types of Anorexia and it is possible that, for some people, devoting their time and energy to becoming extraordinarily thin, is a lifestyle choice, in much the same way that a total devotion to anything may lead to radical lifestyle choices. All well and good (excuse the irony), and perhaps in this instance, starvation is a choice… just another way of living. But, can a disease be a lifestyle? Unfortunately, what the article I read didn’t point out, was that if this is a choice, it can’t be Anorexia or Bulimia or EDNOS. A disease, by its very definition and nature, isn’t a choice… Nobody CHOOSES to suffer with a disease. True, it can appear that way with some mental illness’, but nobody makes a choice to become sick. People don’t choose to die from malnutrition any more than they don’t choose to develop leukaemia. And this is where it all becomes very complex… because CHOICE plays a large part in the distortions that characterise this illness so vividly. A person suffering with Anorexia, believes that they have CONTROL of their weight and their body. They believe in the choice element. They believe that they are IN CONTROL. In fact, the extreme opposite is true. It is the disease that controls them and the disease which distorts their thinking. The disease ROBS the Anorexic of choice. It STEALS their capacity for logical thought about their weight. It DILUTES the ability to rationalise their fear of weight gain and to recognise that they are no longer in control of their mind. I understand the Pro-Ana blogger’s statement in the light of those who wish to diet, but “choosing an Anorexic lifestyle” is an oxymoron. One last point, and perhaps the most important: Luckily, there IS some element of choice.It is reserved for those who are in the grip of an Eating Disorder (or addiction, I think) and it is this: The sufferer may choose to remain in the half life that it forces on them. They may CHOOSE to give up the fight for wellness. Just as somebody who is diseased with cancer may choose to stop treatment, an Anorexic or Bulimic can CHOOSE not to fight the illness. RECOVERY or NOT is the choice. A lifestyle of recovery is agony, but a lifestyle led by the choice NOT TO recover, is to submit to the power wielded by this dreadful disease. 

The Needle Returns to the Start of the Song...

... And we'll all sing along like before...
Goes the song.

Irritating when your internal MP3 is stuck on the same track and no matter how hard you shake it, it won't stop. Trying to get away from it is just about as effective as trying to go on holiday without your head. And don't we all wish we could do that at certain times in our life. Take enough hallucinogens and it's possible, but they're not exactly cost effective and the insurance you'd take out is ridiculous.
No.
No way around it but to play enough music to flush this one out of the system.
This particular musical ghosting is a song by... (I pause, not for literary impact, but because my memory function is compromised by malnutrition, although, it could just be that my powers of recollection are as shite as they ever were)... 
Where was I? Okay. (Breathe) The music... 
It's a song by Del Amitri (who for some unknown reason, I always confuse with Dire Straits). An especially depressing number, aptly named, 'Nothing Ever Happens'. For those who like to listen, go ahead.
Indulge.



I guess it's the theme of repetition that lends the song to my worn out inner ears; and for good reason.
On Monday, I retrace my tracks to the unit where it all began. Back to the beginning.
March 2011, the agonies of which, I captured on this very blog.
Yep.
That's right.
Monday will see me standing outside the gates of hell itself.
And to be clear, it's not that nothing will have changed, because I have. My illness has. My way of thinking has. Three years of various treatments, including seven months as an inpatient, and rather a lot of medication, have put me on a markedly different rung of the ladder.
What is hard, is that it's the same hole. The same darkness. And, pretty much the same distance to the light.
Hence, 'we all sing along like before'.

I want this to work... which means that I will have to work. Very hard. 

It will be bearable, though it won't feel it.
It won't kill me, though the process of recovery will involve the slow death of the illness, so it will feel like it.


In all the darkness, I must somehow manage to fix my eyes on a light I will not always see. 

In order for recovery to take place, you have to believe that, just as there is always a sun and a moon, there is a new life beyond, and there is a different person behind, the illness / addiction. 
The courage it takes to make this leap of faith is immense and for me personally, I don't know if I can sustain it. 

Pillars of Salt. Square One.

But Lot was so afraid he couldn’t move. So the angels grabbed him by the hand, and they grabbed the hands of his wife and of his two daughters, and they led them out of the city. As soon as they were safely out of the city, one of the angels said, “Flee for your lives! Don’t look back, and don’t stop anywhere in the plain! Flee to the mountains or you will be swept away!”  

And then God rained fire onto the cities of Sodom and Gomorrah. Thick, black smoke filled the air like smoke from a fiery furnace.

(Paraphrased Old Testament story - Taken from Genesis 19:25 ff )

Sometimes in life, you have to grit your teeth, set your face like flint and let the hot tears run cold.

You have to put blinkers on and RUN. Ignore every twinge of agony and crash through every hurdle of despair.

Scream if you have to, but whatever you do, DON'T LOOK BACK. Don't look at what you were, where you've come from, how you felt. Just keep running like nobody has ever run before. 

There's a point in recovery, be it recovery from an addiction or recovery from an Eating Disorder, when to look back is fatal. Just like Lot's wife, to look at what you've left behind is going to destroy you. 
In the case of Anorexia, to stop pushing through the pain barriers, to allow yourself a backward glance is to begin to slow down. Casting that quick over-the-shoulder peek, may not feel like it, but it's going to make your feet like lead, your path like treacle. And all of a sudden, it's got you. 
You were going through hell, you should have kept on going. 
Why go through halfway through hell and turn back?
That's what looking behind you will do.

Suddenly, you're so much bigger. 
You can't feel your bones. 
You can't see the ribs, the dip in the sternum, the ridge of the clavicle, the tailbone, the prominent metacarpals, the pits alongside your knees... 

And you turn
into a pillar
standing in the tunnel
you never saw through.
And there, you stay
disintegrating
grain by grain
bone by bone

until 
you 

'Lot's Wife'

are back
to the place you glanced at
Yet,
when you get there,
it's only 
a 
different
shade
of 
hell.

Counting Calories

You can spot them in a supermarket if you know what you're looking for.

Most obvious, are the tiny ones, well wrapped but with tell tale stork legs rooting them to the floor.
They stand close to the shelf, elbows tucked in, head down, clutching a tin.

They are looking at the nutritional information, specifically at how many kcals per 100g. They pick another tin and do the same. If there was a way of x-raying their mind, you'd see vast amounts of data being computed. Complex comparison tables charting an array of brands, computing calories, converting kilojoules, weight for weight, fat content, fibre.
If they weren't already, most anorexics get good at maths at some point in the descent into hell.

Less recognisable, are the less skinny ones, but don't be fooled... They may have just come out of a treatment facility (goodness, that sounds American!). They may have an Eating Disorder which falls into the mysterious EDNOS category. Not all ED patients are obvious, but an informed eye can spot them a mile off.

One of the

very difficult things about trying to recover from an Eating Disorder, be it Anorexia, Bulimia or something less definable, is that once you know the calorific content of a foodstuff, you can't just 'unknow' it. It's an unfortunate byproduct of many people's illness that they have a head filled with numbers which will, presumably, stay with them forever. After all, knowing the amount of calories in a slice of Warburtons Wholemeal Bread, being able to add up a total when including a medium sized egg, and knowing the amount you're ingesting when you scrape out half a pot of Ski Strawberry Yoghurt, is just as essential as knowing your pin number.

You are not going to forget.
Which, in fairness, just adds to the agony of attempting recovery. 
This morning, deciding on a mid morning snack, was ridiculous. Almost laughable.

Imagine.

I'm hungry. My weight has dropped a lot. I know I must try to up my game.

Snack. Hmm...

 I want chocolate with my coffee, but I know the yoghurt coated fruit snack has 70 less calories than the packet of chocolate... and, it's healthier..!(probably not , but hey... everyone falls for the gimmicky health advertising, right?)

At this stage, the inside workings of my mind look a little like a fantastical fight from a Harry Potter film. Numbers are darting about; variously sized and coloured digits streaking through darkness, pressing their shapes into the soft blackness of your retina. 

"What if I halved that, added that..? Had 2 of those for the 1 of those? This is the equivalent to that... Hmmm... It's still over a 100 calories.
Great".


What do I end up with?
A half packet of salted popcorn.

I know I've had 40 calories.
(And before you feel compelled to tell me, I KNOW the info on these things is only approximate and there may be a 70% margin either way... but something is better than nothing.) Which is a mantra I need to double up on... 
(Irony noted)

A World Beyond Our Imaginations

…Maybe there IS. Maybe there isn’t.
Either way, if we don’t allow ourselves to entertain the possibility that there COULD be a different way of living life, and there MIGHT be a different way of thinking about things, we will never know.

I’m not the hippy type. I promise.

I don’t hug trees, I don’t take herbal hayfever tablets, I ‘m not a vegetarian, I’m not a member of Greenpeace, I don’t do yoga, I don’t wear clothing woven in South America and I’ve never tried Arnica.

But (there had to be, right?) BUT, I do believe that we get into certain patterns of thinking. Even scientists report that there are certain ‘neural pathways’ in the brain, which is a technical way of saying that our thoughts get used to travelling along particular alleyways, leading to familiar places, default settings, if you like. Humans are creatures of habit, brains follow suit.

What are the implications of all this for those of us in recovery?

A friend recently told me that, although they’d like to believe in something bigger, they just COULDN’T and I sympathised because I, of all people, understand doubt, cynicism and unbelief. I battle it everyday in order to keep the faith I DO have, alive. Later, I returned to our conversation in my mind and came to the realisation that the word ‘couldn’t’ would probably act as a barrier in her mind.

To be truly open to something, like the possibility of recovery, is to allow it to rattle round our minds without any thing as concrete as ‘words’ attached to it. Just as if you are rolling a ball round a clean floor; no mud, no dust, nothing to stick to it…

Sometimes, I wonder if it’s in this act of ‘allowing’, that hope filters in… unseen… unheard and then… suddenly:  there.

Opening up old wardrobe doors. No thoughts. No can’ts, cans, couldn’t, wouldn’t, must, should or shouldn’ts.  Just opening something up.

It has to be worth a try.

Speaking of Normalcy...

 

I couldn't resist taking a cheeky snap of this mug when I saw it in a shop window.
I'm on holiday in Cornwall; land of smugglers and sea shanties and shipwrecks and ancient tales of hidden pirates' plunder. It's now home to thousands of artists (on account of the beautiful, flat light and the sheer sense of SPACE). 

Cobbled streets, winding lanes, laid back locals and sun soaked flora. The essence of Cornwall. Pints of real ale, Cornish pasties, and fish and chips fresher than any you'd ever find. The streets here are lined with gift shops galore; the type that you bump around, stroking pretty wooden shapes, painted in low tone shades - willow green, dusky pink, dirt track yellow...
It's as far South West as you get in the UK, and the sun sets here last. Days feel long and it's endlessly beautiful. 

I'm on a family holiday. The first for years.

I think we're past thinking we're a nice normal family. With two anorexics, an anxiety disordered mother, a control freak dad and another sister who, believe me, has her own scarring, we're hardly 'normal'. I'm glad we can (sort of) admit it (bar my mother). I'm glad we can (sometimes) laugh about it (almost). But, I remember a time when we couldn't. 

Many years ago, when the values were set differently, when the pride was stronger and the pain - rawer; we were  bound and gagged for fear that someone might see we weren't the "nice, normal family" that popped up, smiling and glossy and beautifully 'normal'.

You might ask the question, 'what is normal?'in an attempt to deny that there's any such thing. 

In my experience, those who deny 'normal' (mother), are either defending their hidden non-normalcy, or, they're just not weird enough. 
If the family is a piece of wood, pain is a plane, relentless at task with which it's charged. And the shape we're in now comes from years of scraping and turning and sanding and smoothing. And we're still very much a rough hewn hunk of wood, but at least we're not still in the denial phase of 'normal'. 
To attempt comparison is ridiculous... yet in some strange way, it's more painful to be at that end of the process. I still bear scars from smothering hands that insisted that we were 'normal'.

Facts and Figures. It's All or Nothing

Three Months - One Stone (6.3kg)  = Slow Downward Trend

Based on current rate

BMI 16.1
- 1 Stone  (3 months)

 = BMI  13.6 by end of August

I'm trying so hard to keep fighting but I'm doing a really intensive teaching course (English as a foreign language) and I'm finding it very hard to focus on both the input sessions, assignments, lesson planning and teaching, and the battle against Anorexia. 

I must write here more. The intention is there but I find the drive towards perfection kills my ability to even begin. 
This is so typical of somebody who has 'all or nothing' thinking. 

Breaking ...

Silence, for all it's mystical, whimsical and wise properties, is keeping me prisoner. With the passing of each silent day, another bar goes into the cage and I, half crazy for the want of words, pace endlessly up and down the concrete floor.

Inside me, thoughts, ideas, agonies scratch to be given a voice, nails on a blackboard, wet fingers on cotton wool.

Today it has become unbearable and so I sit here, trying to break this silence.

I have ideas swilling round inside and yet it almost hurts to entertain them. 

I have hopes that this post will loosen the odd bar, enough at least for a piece of me to slip through.

"Absolute silence leads to sadness. It is the image of death."

Jean Jacques Rousseau (1712-1778) Swiss political philosopher and essayist"
.

Eating Disorders Awareness - One Truth About Anorexia

I'm conscious that it's National Eating Disorders Week. 
I'm also conscious that much of my writing here has borne witness to my own, very personal, struggle with Anorexia and that, whilst there are many apparent similarities between sufferers, each and every person has their own 'strain' of the illness. 
I recently watched a BBC documentary by a now recovered minor celeb who, having suffered from Anorexia in her youth, embarked upon a quest to find out 'The Truth about Anorexia'. I watched with a  degree of cynicism, (typical of me) because the results of this exploration were pretty obvious from the outset. 

(Aside) As it happened, I was more intrigued the next day, by the widespread and vicious backlash on various discussion forums, where anorexics ripped the programme, and its celebrity 'investigator', to shreds, claiming that she obviously hadn't been a 'proper' anorexic! 
That would be another topic!

One thing that I've learned from the large number of patients in the treatment centres I've been in, is that there IS no single 'cause' of anorexia. There can be no 'getting to the bottom of it' because it's as shape shifting as the virus for the common cold.  

You think you can spot an anorexic? It's the legs that give it away right? The two pins that, by some miracle, are holding them up. And the face. The way their eyes sink into the skull, dark skin sagging at the ridge of bone which runs from the top of their cheek to the deep line around the mouth.
The clothes that hang baggy off their shoulders. Tired, tiny arms, narrowed, fleshless at the tops. 
Yep. Definitely.
As I type, I sit in Cafe Nero. Couples sit sipping valentines coffee. A barrista sweeps conscientiously, moving the easel with the 'Hot Soup' ad, concentrating on each swish across the tiled floor. A young man sits at his laptop, looking over dark glasses at intervals. 
I'm drinking a one shot Americano with skimmed milk, hot. My make up is immaculate (last time I checked anyway). Subtle grey eyeshadow, a touch of mascara, a little blush. I'm about seven stone; that's forty five kilos to the metric crowd. My clothes are an eight. I've just eaten a Kit Kat. 
Nobody knows I'm anorexic. 
Nobody can see that beneath the recently acquired flesh, a cold skeleton howls, like a forgotten child. Nobody can hear the whispers, the taunting desire to have one of the brownies that the rosy-glow girl to my right is enjoying. Nobody can see the rapid calculations, the figures flicking up and down as I add, divide, add, multiply; 107 calories = my biscuit, 100ml of skimmed milk =  43Kcals x 2 plus a bite of cereal bar. It's too much. How can I compensate at dinner? 
Nobody sees the anorexic who knocks around in a body too large.
I may be sitting near another at this very moment.

I think I've digressed somewhere. 
I set out to illustrate the fact that the one truth about Anorexia I know is that everyone's illness is different.

During inpatient treatment people presented with dangerously low BMIs. But how they got to that point varied. 
Okay, we all have an issue with food. But some anorexics are calorie obsessed, whilst others are more preoccupied with the fat content in foods. 
Some are addicted to exercise (myself included) and can hardly sit down for more than ten minutes without having to get up and do press ups or squats; others can happily lie on a sofa for hours and sleep. 
Some patients have buggered up their system by taking laxatives and/or making themselves sick. Others won't take a tablet, even for a migraine.
Some quake at the sight of a potato because carbs are sworn enemies, others are too afraid to eat a carrot because it has somehow become a 'fear food'. Still more are terrified of dairy products, not touching milk or cheese for years.
I met patients who will 'water load' to throw their weight (water loading is a common but dangerous behaviour practised by eating disordered patients who consume vast quantities of water in order to fake weight gain). Then again, some people are so obsessed with knowing their actual weight that they will wear exactly the same clothes to be weighed. 
Some anorexics are so scared that their body will absorb fat that they won't use cream shower gels or moisturiser on their skin. 
I've met anorexics who drink copious amounts of alcohol, whilst others won't even sniff it.
When I was at my worst, I couldn't drink coffee for fear that it contained hidden calories. I couldn't trust the calorie content on certain labels and so I ruled out anything which I deemed to have 'too few calories to be believed'.
Some people can't watch food programmes, others read cookbooks obsessively and liked nothing better than to cook a three course meal that they could never eat.

Eating Disorders may present similarly, but no one sufferer has the illness in quite the same way, which may be why they are so difficult to treat and why they are still so widely misunderstood.

The writer of this blog...

... has been in hell for the past two months...

perhaps more.

My silence here has been down to the simple fact that my head is mostly a jumble of sounds which don't seem to translate into anything as neat and orderly as WORDS.

It even sounds far fetched to me, but it's one of those 'you just had to be there' things. 

Unless you've been in my shoes (and stomped round and around the same hospital building three times a day for twenty minutes 'fresh air') my ridiculously dramatic sounding excuse for silence just won't wash. 

(Cue Persil ad...)

No really. 

Prompted by a friend to describe what it's like to be restoring weight, I wrote that it's like...

...having your skin peeled off in long strips, and then your body being rolled around on a grater, with pressure being applied in varying degrees in different places

and sometimes

it makes you bleed purple rivers in hidden places

or mouth short 

breathless 

cat-screams

and other times

anger-fear juices inwardly curdle

with an inverted agony

that leaves me folded on the floor

pressing cold fists into my eyes

to stem the red pain seeping out of my sockets

and in me, a mighty snake twists

my colon, a strangled tree trunk 

and the more I eat

the more it turns and thrashes 

against the raw muscle tubing 

 ***

Okay. So every word is wringing with pubescent angst and perhaps the silence, if not golden, is at least preferable to the torture - jargon. 

But this is the truth of it.

This is how it feels for my anorexic head to be growing a body.

And no amount of Seroquel or Pregabalin or Duloxetine is going to make it okay. 

It's not supposed to be a joyride, this recovery lark... but six months in... it hasn't got easier... just...
... different. 

No rest... for the Anorexic.

BMI 16.8
42 kg

This is hard.
I'm growing. More, I've GROWN. 
(Groan.    I do.)

It's getting easier to eat the food on the unit.
I'm not feeling the intensity of the agony I was. I rarely end a meal and feel like hanging myself from the shower rail (which, incidentally, is magnetic for just that reason).

Now it's OFF the unit that the problems occur.

I have weekend home leave fortnightly. 
It would be weekly if I didn't lose weight every time.
I TRY. I really do. But I panic and I walk around a lot and eat fairly 'light' meals and feel triumphant if I manage to keep my head so busy that my body 'forgets' that it has missed a snack.

Exercise remains a HUGE issue for me.

I NEED to get past this.

As I was on one of my walks the other day (I'm allowed three twenty minute walks nowadays) it occurred to me that I can restore my weight to a BMI of 20 - 25 and still be a slave to exercise, a slave to the thoughts which perpetually torment me the minute I have to sit down for a second longer than 'rest' is enforced for. 
I can restore my weight without ever challenging myself to eat pizza or drink wine or eat ice cream or pasta or ciabatta or gnocchi or avocado or any of those things that terrify me.

I could well walk out of this hospital, a picture of health; the epitome of 'normal'; cheeks glowing, hair shiny, eyes sparkling; vitamin B, C and D radiating from every pore... and still be utterly horrified at anything more than a sprinkling of carbs across my week, and COMPLETELY unable to even contemplate something like takeaway.

I HAVE to challenge myself with these foods or I will never overcome the fears I have.

And yet.

I feel helpless when it comes to even sitting in the hairdressers for a couple of hours. 
Today it nearly made me cry that I had to sit down for so long.

If I could kill this illness, I'd want to torture it first.
Torture it like it tortures me and all the girls here.

Distortion - The Extent To Which Anorexia Lies

I sit in the shabby hotel conference room, anxious for the guy whose innocent gesture has landed him a bidding price that is far, far higher than anything he can afford. 

Nobody else is bidding and my fingers are twisting themselves into tight, three dimensional infinity symbols. 
"Any advances on..." 
A grey suited, old man, wearing a felt Trilby, half rose and then collapsed in the middle of the room.

"Time... Time..." 

Time for what? 

A melodic voice in the distance

"... that time again..."

I lurch and my breath is caught and it's sudden: The realisation that I'm here, not there. I'm awake. 

Six am, in the half light of Weigh Day, and the Support Worker stands cooing at my door. 

I know I must leave the bathroom door ajar so she can hear me as I pee.

It's a long time since this felt like an indignity. 

I stumble down the corridor into the glare of the clinic room. Somehow I manage to keep shading my eyes as I peel off my nightwear.

The scales confirm weight gain.

I fight my way through a cloud of sleep - laden mist to calculate just how much.

I do, and I am not devastated. 

Perhaps I'm getting better. 

Perhaps I'm just too tired.

I pretend I'm still asleep as I crawl back into bed.

Miraculously it works. Until 7.45 when the alarm pips me back into reality.

Even as I write the word 'reality' here, I debate whether to use inverted commas, because actually, within minutes, the distortions conjured by this illness can transform your mind from a Ferris wheel, to a drop spindle for your thoughts. 

At six o'clock in the morning, I knew exactly how much weight I'd put on in the three days since my last weigh in. Approximately one and a half hours later, during which time I had done nothing but sleep, I awoke convinced that at least three days worth of weight had suddenly piled on and, were I to stand on the scales again, they would read quite differently. 

Just to make it clear: in this moment, I was utterly convinced that my body had withheld weight until one minute AFTER I stood on the scales, at which point, it suddenly and spontaneously added the pounds / kilograms that it had been hiding. 

Yes. 
These are the lengths that Anorexia will go to in order to keep its victim ensnared.  

And this is only one of the many distortions its capable of.

The fact that the mind can do this in a period of time when there has been no food intake, perhaps you can imagine the outstanding strength of some of the convictions that an Anorexic has after eating, the sheer havoc wrecked by having food in the body.

Although everyone has a different experience, I am often overwhelmed by the physical sensation of fat layering itself onto the backs of my legs and my thighs. At any given point in the day, I will suddenly be aware of this thickening of my body. I swear, I can FEEL it. I've been told this isn't possible, and yet, it's always someone who hasn't HAD the experience that tells me. Perhaps you have to have experienced feeding your skeleton, putting flesh onto bone, to feel it. 
Or perhaps it really is another of the distortion of reality... which is a frightening thought because, how will I ever know what's real and what is, in essence, a figment of the imagination. Like a phantom limb, the fat clumps on my body. I feel it and, I SEE it. 

And yet, as I do my calculations, I briefly think of the previous nights' anxiety; the conviction that I must have put on a least a kilogram (that's two point two pounds). 
I hadn't.

Can I really feel POINT three of a kilogram? 
Really?

The ugly truth is that part of my reality is almost certainly distorted.
My truth is not THE truth. 

Every Picture...

... tells a story, right?

Right.

Seeing as I am having great difficulty in communicating some of the ways in which my head is dealing with the treatment here in the unit, I figured that perhaps I could use some pictures. 
Cop out?
Perhaps. But at least it's something; and something is better than nothing. 



When I came into this treatment centre, my sister (the anorexic one) sent me this bracelet. If you look closely, you'll see that the simple piece of thread is tied to a charm depicting a little bird. 
I haven't taken it off since I put it on. For me, the bird is representative of hope and freedom.

I think one of the hardest things in recovery is holding on to hope. Right now, despite my weight being up to 40.1 kilograms, I can't ever imagine being about to shake this illness off. 

But I have to hope.
I need it in my spinal fluid. I literally need it to strengthen my backbone. 
I need it to give me the strength to keep going. 
I need it like the world needs a horizon. My world needs a horizon. I think it's a need that every human being has. 
Trouble begins when the horizon isn't visible.

Hope Is A Thing With Feathers

If life is a ragged nail, chipped and broken by the most menial of tasks, poetry is a glass file, reshaping and smoothing... 

American poet, Emily Dickinson is one of the most well known writers of the nineteenth century. 

All too familiar with the alternating pain and numbness of depression, and the paradoxical feelings of safety and loneliness which come from isolation, she poured her thoughts into poem after poem and, famously, a vast number of letters.

In what I consider to be one of her most beautiful verses, she uses a bird as a metaphor for hope. The poem reflects the simple innocence of hope, making the point that whilst it may appear as fragile as filigree, hope can endure extremes, harsh storms and the most bitter winds.

I made this poster for my room here in the unit. 

I look at it morning and night, every time I feel that hope may have perished...

I pray for Dickinson's words to be true for me.

“Hope” is the thing with feathers 

BY EMILY DICKINSON

“Hope” is the thing with feathers -

That perches in the soul -

And sings the tune without the words -

And never stops - at all -

And sweetest - in the Gale - is heard -

And sore must be the storm -

That could abash the little Bird

That kept so many warm -

I’ve heard it in the chillest land -

And on the strangest Sea -

Yet - never - in Extremity,

It asked a crumb - of me.

Hope?

I'm Still Here...

... Still in the hospital.
... Still battling.
...Still wanting recovery
and...
Still finding communication very, very difficult.

However...
I am currently weighing in at 38.8kgs and my BMI is now above 15.
Although I am finding weight restoration almost unbearable, I am finding that eating the food itself is less frightening.
I even enjoy it.

I want to begin writing about the recovery process and I want to use my experiences to benefit others in some way and yet, I still have so, so far to go.

Tomorrow I get to go home for one night after twelve long weeks... Or is that thirteen?

I think it will feel like heaven, and yet, I am scared I'm gonna mess it up.

If you're still reading here, 

you are more faithful than I am deserving, and show more loyalty than this blog warrants!