The writer of this blog...

... has been in hell for the past two months...

perhaps more.

My silence here has been down to the simple fact that my head is mostly a jumble of sounds which don't seem to translate into anything as neat and orderly as WORDS.

It even sounds far fetched to me, but it's one of those 'you just had to be there' things. 

Unless you've been in my shoes (and stomped round and around the same hospital building three times a day for twenty minutes 'fresh air') my ridiculously dramatic sounding excuse for silence just won't wash. 

(Cue Persil ad...)

No really. 

Prompted by a friend to describe what it's like to be restoring weight, I wrote that it's like...

...having your skin peeled off in long strips, and then your body being rolled around on a grater, with pressure being applied in varying degrees in different places

and sometimes

it makes you bleed purple rivers in hidden places

or mouth short 

breathless 

cat-screams

and other times

anger-fear juices inwardly curdle

with an inverted agony

that leaves me folded on the floor

pressing cold fists into my eyes

to stem the red pain seeping out of my sockets

and in me, a mighty snake twists

my colon, a strangled tree trunk 

and the more I eat

the more it turns and thrashes 

against the raw muscle tubing 

 ***

Okay. So every word is wringing with pubescent angst and perhaps the silence, if not golden, is at least preferable to the torture - jargon. 

But this is the truth of it.

This is how it feels for my anorexic head to be growing a body.

And no amount of Seroquel or Pregabalin or Duloxetine is going to make it okay. 

It's not supposed to be a joyride, this recovery lark... but six months in... it hasn't got easier... just...
... different. 

Time...

... flies.


I have been trying to write here for days now but I have felt wordless. 


I've also been exhausted because I have started back at work.


It's a trial... in every sense as it turns out.


I'm not sure I can cope with the anxiety it is provoking.


And there is no TIME.

News Flash

I hate it that my main reason for blogging right now is that I feel under some kind of pressure to write something. My life seems to be full of 'shoulds' which are generally, profoundly unhelpful in terms of trying to reduce anxiety rather than maintain it.


I'm taking 200mg of Pregabalin right now but apart from a noticeably calmer initial phase, it seems to have made little difference. 
This being said, it is perhaps worth noting that my anxiety might be much worse without it.


"God grant me a peace
beyond Pregabalin" ... I prayed the other morning.


and I wait.




                                 *** Breaking news***


I have convinced my consultant and Dr Death that I would be better if I could return to work! 
And so... ladies and gentlemen
(drum roll)
... after a year...
... 
...
I am allowed a PART TIME phased return and 
the most incredible thing
is that my bosses
have agreed 
to make my contract part time 
at least until September.


They didn't have to.
They could have got rid of me.
They could have put me under nasty 'capability' conditions
especially as Dr Death's prognosis is incredibly negative, predicting the usual doom and gloom and failure to sustain and manage and recover and, and, and 
all the miserable misery that he just LOVES to pile into his letters.


Can I defy his predictions?


I have reached one major conclusion about recovery from Anorexia.


In order to recover, you have to act like a 'normal' person.


Even now I hear the horrified screams of  '...there's no such thing as 'normal'.
But there bloody well is where eating disorders are concerned.


In order to recover, one must pretend to be normal, which means that a)they must force themselves to cook and eat as if they do not suffer from their condition.
b) They must behave in such a way that, if being observed, nobody would notice anything markedly strange or different about their eating habits.


Totally impossible?
Well.
We shall see.


Tonight I ate what I was served.
Every mouthful hurt.
I smiled and chatted and ached and imploded.


Recovery is like being helped into a bed by people who have no idea that the mattress is packed full of upturned needles.

I want...

I want my life back.
No matter how bad things were, nothing, NOTHING can be as bad as Anorexia.


My weight remains in limbo, my mind in hell.
I am unable to complete tasks I attempt as my brain is just too addled.


I have started taking Pregabalin, despite the fear that its most common side effect is weight gain. 
I don't care anymore.
I just want the illness to go.


I wish that I could be put to sleep whilst my weight is restored.


It occurs to me that I haven't written about The Woman lately.
I have so much to say. 
So many words in a swirling vortex - half formed ideas dance purple shadows in front of my closed eyelids in the early hours.
I resolve to write posts about the nature of Anorexia and my understanding of its relationship with anxiety and depression.
I swear I'll reply to friends, blog friends and world friends, whose words and caring constantly brush soft against my bruises.
And yet, come the morning, I haven't got the mental energy.
It's all I can do just to force the bran through my lips.


I want to go back to work.
I want to live again.
I want to eat without feeling like I'm sinning.
I want to live outside of hell.


I want to ignore the old parental adage that whispers that 'I want doesn't get'.

Er... About that "lighter note"...

... In all honesty, I find it significantly easier to write 'lighter note posts' when I am lighter in a more literal sense.

When I last posted I had taken almost two weeks away from the unit. One week on a trip down to the Cornish coast and a few days 'thinking time' to decide whether or not I was able to truely commit to treatment.
In that relatively short amount of time, I somehow managed to 'achieve' a comforting weight loss of four pounds (approx 2kg). Thus, with my BMI safely hovering around 14, I felt able to be a little more relaxed.
In the end though, the misery of the rapid increase in restrictive eating and the anxiety caused by the fact that I felt like a fugitive, aided my decision to return to the unit to continue the treatment.

After a couple of weeks of fairly intensive 'refeeding' (ugh! So much 'treatment lingo') Thursday's 'weigh in' revealed that my BMI is back up to 14.5. My tears though, were relatively shortlived as somehow, my brain appears to experience some miraculous kind of backlash against the anorexic desire to sabotage any weight gain through intense exercise.
For reasons possibly only known to God himself, despite the panic of being faced with jacket - potato - with - tuna - mayo lunches, and margarine sandwiches with hummus, I seem to have managed to maintain a fairly determined, positive attitude towards the concept of recovery for the remainder of the week. In fact, in another attempt at taking steps towards defeating this twisted illness, I handed in my pair of scales on Friday. As I passed them to one of my favourite staff members, I felt as though I was holding my hand against a hot iron.

The burn hasn't cooled yet and if anything, I know it will become even hotter tomorrow morning as 'weigh in' approaches.
I can only hope that time will afford some healing.

A Day in Life at The Unit. Part 1

Thank you all for continuing to support my journey on the roller. I guess it's quiet right now.

Or rather, the screams are stifled much of the time.

I'm very tired and lacking in energy.

Re-feeding is an incredibly upsetting experience and I'm already dreading tomorrow (a 'weigh' day in case I haven't put on enough weight and have to face the prospect of even more food being added to my meals or snack times in the unit.

In keeping with the desperately 'split' nature of Anorexia, I am equally dreading the possibility that I may have put weight ON.

However, I write this after a day where I feel as though I have barely had a moment without stuffing some artificially sweetened / low fat / low - as - I - can - get - away - with foodstuff down my gullet. (And yes, technically speaking my meal plan is supposed to exclude all such products but hey, it's the weekend.)

I have actually put on a few pounds. This, a response to last week's blood results indicating the fact that my liver, heart and kidneys are struggling; my white blood cells are decreasing and my protein intake is way too low.

How this should be happening now, at a point where my diet is more varied than it has been for months, seems to beggar belief but my doctor explained that there is often a bit of a 'lag' with these things.

The guy who runs the program we follow at the unit (who, for reasons I will explain at some point, I will henceforth refer to as 'The Godfather') offered me the option of potassium supplements or 2 bananas a day.

Needless to say, the bananas are not a feature of my new heart-sustaining regime.

So.

Tomorrow is tough before it has begun.

Although that's not exactly positive thinking and I understand that I should possibly reframe that thought in a CBTish kind of way.

Still.

Here's how it's going to look on a purely practical level.

I'll get up early, shower and make myself look as 'well' as I possibly can without looking like one of those orange make up ladies behind the Max Factor / Elizabeth Arden counters at Debenhams.

I'll chop an apple or small pear into small slices and eat it painstakingly slowly regardless of whether I am early or late (and despite panicking that I am, in fact, the latter).

I'll blare my way through the beautiful countryside at a speed which is as far above the limit as the car in front will allow (OK... so I know this is not a good way of doing things but I have a weird obsession with never allowing myself to be too late), twitching and 'dancing' as much as I can to burn off calories.

Arriving on time, or even half an hour early, I'll drive around looking for a non existent parking space until I am about 5 minutes late.

Getting into the unit, I'll sign in and go through to find the girls I've grown to love so much.

It's Monday and the anxiety of the weigh in is thickly palpable. I'll dig out 'Sticker of the Week' and they'll all choose a cute, puffy animal sticker which they will either wear or stick on the new week's food diary. Some of us crowd around two clipboards, one of which contains a table headed 'Lunch' and the other 'Snacks'. We have a selection to choose from for the day. Girls will wander in and out as we take it in turns to go to the weighing room where one of the lovelier clinicians awaits our blustered, flustered entrance.

Once this procedure is over, The Godfather calls us to sit around in the circle and we check in and talk about our weight. No specifics. Just whether it's up or down and our feelings around it.

The group are then invited to feedback.

This goes on all morning until snack time at 10.30 and continues until lunchtime at 12.15.

Sitting around 2 tables, each with a hawk eyed member of staff, we swallow our food with varying degrees of cheer.

We are well bonded.

We are there because we want to get better. Sort of.

But there is rarely a meal where someone doesn't sit, tears running down tortured face, as the sandwich appears to be more threatening than usual.

I'll stop here because I'm so tired and I haven't been sleeping too well lately.

Balancing Act

Anyone for Valium..?

Tomorrow I fly.
Sounds good huh?

Hmm.

It would be if I wasn't a)severely emetophobic,
b)prone to bad panic attacks
and
c) flying alone.

A negative way of viewing it all, I agree...

Positive things are that a) I go armed with a month's worth of Diazepam
b) I haven't dared to book a flight to go abroad for over 2 years
and
c) ... er.... I'm scraping the barrel here... c is........... Ok. There is no C. I'm scared. No two ways about it.

The other thing that I haven't mentioned is that a little bit of this holiday is about trying to get a little bit better and put on a bit of weight.
That's the promise I've made to my family and to myself.
Problem is, only a PART of me wants that.

What I would really like, is for a ceasefire. Just for a couple of weeks.
And yet... without all the frenetic exercise and the discipline and the anxiety and the scales... How can there be peace?

I'll attempt to write more.

Delights of Duloxetine

I don't even want to think how long I have been taking the anti depressant, 'Citalopram' for. Perhaps a decade?

I guess that the efficacy of most medications decreases after long periods of time, although I have never heard this theory in relation to anti d's so cannot claim that this is the case.

However, last week, suffocated by a thickening black fog, I stumbled into the doctor's surgery (not a place I frequent unless death feels imminent) and admitted I had no desire to be alive anymore.

I sat hollowed and empty, crying without feeling the sensation of tears on my cheeks.
I answered questions that I can't remember, without being able to form coherent sentences.

A change in medication has been suggested before but I have always felt too anxious about the upheaval of such change. This time, I simply no longer cared.

I didn't care much about anything actually.

Didn't care when a man who had been staring at me in his car got out and followed me to a secluded area of woodland.

Didn't even care when he tried to make a move on me.

Nothing happened and I suppose I was lucky.

Either way, I find myself, a week into stopping Citalopram, a week into weaning onto Duloxetine (more famously, Cymbalta).

The effects have been good in terms of my mood, though at this point, it could well be a combination of factors, not least of which would be my return to work after the fraught Easter "Holiday" where I lived two weeks as a fugitive. Alternating between hideouts in the gym, supermarket car parks, retail outlets and coffee shops... Anywhere to avoid the pressure of food.

The downside is the side effects.
I haven't slept a full night for two weeks.
The pressure in my right ear is, at times, immense. My eardrum seems to oscillate constantly, and I am drive crazy by the fruitless attempts at yawning.
My stomach is bloated and rock solid. I am almost bent double from the acid pain that spreads from one end of my diaphragm to the other.
That kind of thing.

I have a huge amount going on in my mind but I feel unable to express any of it.

So what's new? I ask myself.