Hole In The Wall God

Although I rarely mention it in my writing here, my faith is one aspect of my life which I think would fundamentally change the very essence of my being were it to completely disappear. In truth, my spiritual journey, much like my therapy journey, has been a challenging mixture of blindness and revelations; of soaring and stumbling; and of denials and acceptances.

Proud of this shot! 

I've been in places of unshakeable certainty, unable to understand how anyone could ever question such a tangible God. In later life, there have been times when I've swallowed bitterly as depression and the weary despair and fatigue that accompanies it, flecked inky pools of indifference and doubt across any conviction that I once had.

At this point on the journey, I stand on a different mountain, overlooking a very different landscape.
A part of me draws some strength from the inner sense that God stands with me.
This acknowledgement of 'a higher power' seems to play a crucial role in recovery. AA refer to the 'higher power', as do a range of other successful addiction recovery programs; the theory being that as human beings, we are often weak willed and for all our good intentions, cannot free ourselves from the power of ingrained behaviours and habits. We need to draw on a strength that is not 'from' us, but is outside of us.

A part of me worries as I consider how God is referred to in the 12 step programs.
Does it not all sound a little bit 'God-as-hole-in-the-wall' ish?
I'm not sure.

What I do know is that right now, I find myself knocking on heaven's door morning, noon and night, asking for supernatural strength with which to fight the Anorexic howling which coarses through my mind interminably.
I pray as I sit down to eat my snacks, my meals  and as I battle the urges to spit my food out after chewing it.

Anorexia: Disease or Lifestyle?

Monday’s Telegraph newspaper marked the beginning of Eating Disorders Awareness week with an article about ED websites: More specifically, ‘Pro Ana’ sites.  (For the uninitiated, these sites are sites set up to encourage those who want to starve themselves. They share tips and tricks about hiding food, fighting hunger, effective purging, dealing with interfering parents / loved ones and often sporting photographs of skeletal bodies to give ‘thinspiration’ to followers).I skimmed Sarah Rainey’s article , too tired of the topic to want to engage with the politics and the emotion held between the lines of the pro ana blogger, the parent of a (nother) very bright, talented ‘whole life ahead of her’ dead Anorexic and ED organisations. One thing however, leapt out at me.This:“Anorexia is a lifestyle, not a disease”.It’s something I’ve heard many times in various forms and generally from sources who, clearly, have no understanding of the pathological nature of Anorexia. Without wishing to state the obvious, I find the implications of the statement upsetting because it embodies the attitude that somehow, Anorexia is a choice one makes. For me, this is an absurd idea. However, as I have previously tried to explain (here), I think there are different types of Anorexia and it is possible that, for some people, devoting their time and energy to becoming extraordinarily thin, is a lifestyle choice, in much the same way that a total devotion to anything may lead to radical lifestyle choices. All well and good (excuse the irony), and perhaps in this instance, starvation is a choice… just another way of living. But, can a disease be a lifestyle? Unfortunately, what the article I read didn’t point out, was that if this is a choice, it can’t be Anorexia or Bulimia or EDNOS. A disease, by its very definition and nature, isn’t a choice… Nobody CHOOSES to suffer with a disease. True, it can appear that way with some mental illness’, but nobody makes a choice to become sick. People don’t choose to die from malnutrition any more than they don’t choose to develop leukaemia. And this is where it all becomes very complex… because CHOICE plays a large part in the distortions that characterise this illness so vividly. A person suffering with Anorexia, believes that they have CONTROL of their weight and their body. They believe in the choice element. They believe that they are IN CONTROL. In fact, the extreme opposite is true. It is the disease that controls them and the disease which distorts their thinking. The disease ROBS the Anorexic of choice. It STEALS their capacity for logical thought about their weight. It DILUTES the ability to rationalise their fear of weight gain and to recognise that they are no longer in control of their mind. I understand the Pro-Ana blogger’s statement in the light of those who wish to diet, but “choosing an Anorexic lifestyle” is an oxymoron. One last point, and perhaps the most important: Luckily, there IS some element of choice.It is reserved for those who are in the grip of an Eating Disorder (or addiction, I think) and it is this: The sufferer may choose to remain in the half life that it forces on them. They may CHOOSE to give up the fight for wellness. Just as somebody who is diseased with cancer may choose to stop treatment, an Anorexic or Bulimic can CHOOSE not to fight the illness. RECOVERY or NOT is the choice. A lifestyle of recovery is agony, but a lifestyle led by the choice NOT TO recover, is to submit to the power wielded by this dreadful disease. 

Going... Down?

Okay...Title only meaningful to those who are familiar with the old Aerosmith track, 'Love in An Elevator', a good but vastly overplayed track (at one time). My frustration with my one time favourite band has increased as the teenage, rock-chick-love has lessened; all because they sold out to the soft rock market with dribbly anthems like 'Don't Wanna Miss A Thing'.
Apologies. My intentions to write about 'recovery' have been twisted into a rant about my old musical idols.

(Aside) It occurs to me as I apologise, that actually, Steve Tyler and Joe Perry are a long way from being completely irrelevant links to the subject in hand. Both singers have grappled and battled with serious alcohol and heroin addictions. Both know the agonies that come with fighting to be free from that which has possession of your mind.

Addiction comes in so many forms and is something so closely related to the topic of Eating Disorders that it is worthy of some careful thought.
Now however, my mind is too tired to begin debating the fine lines and the overlaps. I regularly feel the urge to write some more informative pieces about Anorexia and Mental Health here but every time I sit down to write, the words sort of ebb away from my (cognitively impaired) mind. 

That's right. 
"Cognitively Impaired". 
The term, used by the experts, to explain the condition of a mind weakened by the effects of malnutrition. 
It makes me wince to accept that this is my current state and yet, all my Anorexic protestations, the frantic scrabbling to deny truth, dwindle in the face of plain, starkly real figures. 
The scales don't lie, although, typically, in the mind of someone suffering with an Eating Disorder, they are incorrect. Not day upon day upon day they're not. 
I'm following that bloody line of decline, and I KNOW it... It's as though I am rendered completely helpless by the power of the Anorexia. 
My daylight head says, 'C'mon! Get a grip! You have to find the strength, the power, to beat this';  In the lonely darkness of the restless night, the more sinsiter voice, 'You'll be lucky if you wake up to see a new day. Your internal organs are tired. Your heart is weak'. 

A young lady who I was an inpatient with for six months, died last week. 
Multiple Organ Failure caused by a long term Eating Disorder.
She was strong, lively, witty, intelligent. 
Her death rocked the ED community I 'served time' with. 

What a TRAGIC WASTE. 

At the same time, my best friend here in ___________  gave birth to a little girl. 
And so, the cycle of life and death continues. Everywhere today and tomorrow and for the rest of time, the mortality drum will continue, beating out it's rhythm on the lives it chooses. I get that. 
What I struggle to accept, is the slow suicide that this illness contributes to this pattern. It's so... horribly pointless. 
Life is to be lived, to the fullest. Jesus said that. And he is not to be argued with. 
Why then, am I, and so many beautiful, talented, young lives, subscribed and obligated to serve this hideous monster?

All answers on a postcard...

For Dear Life

A small platform stands high above the trees. My feet are squashed on the square and I wobble and bend into, and against, the varying winds in my effort not to fall.

I am frightened to even breathe.

I look up and see blurred lines in the distance but I am too scared to focus on anything other than staying balanced.

Those lines are the date of my treatment in the unit and they hang somewhere a space and a half away from me. I try to look up at them, to adjust my vision. If i try to brace myself I'm scared I'll tense up too much and topple.

For the time being, I can only look directly at the scales I stand on, hardly daring to breathe in the precarious safety of the diminishing numbers.

Somewhere in my mind, I am trying to come to terms with the fact that weight gain is going to be inevitable.

Two friends gave me this stone earlier in the week.

I've been holding onto it at night, hoping that somehow, it will sink beneath the surface of my skin.

The battle seems endless and hope is something that I know I need more than any other weapon in my armory right now.

On The Other Side.

"...But there's another kind of hole, and that is the wound that divides family.
Sometimes the wound occurs at the moment of birth, sometimes it happens
later. We are all fixing what is broken. It is the task of a lifetime. We'll leave much unfinished for the next generation...
...I have infinite faith in the craft of surgery, but no surgeon can heal the kind of wound that divides two brothers (siblings)"

Abraham Verghese

Cutting For Stone

As I am having huge problems finding words at the moment I have resorted to using those of others.

This resonated as I read it the other day.

There's not a lot out there which acknowledges the impact of damage between siblings.

I remember in the early days of my sister's anorexia, when the wound of her violent and total rejection was still so, so raw and my flesh unaccustomed to the pain, searching high and low for books about anorexic siblings.

All I found was a reasonable amount of literature on 'Helping Your Child Eat' or 'Coping With An Anorexic Child'. That kind of thing.

A good few years ago, I figured that one day I might have found the healing and the balance I needed to help me write a book about anorexia with siblings in mind. I thought that somehow, I would be able to look on the years of loss with the glow of gentle understanding borne of the twisting grief of watching the slow suicide of a sister I loved with everything I had.

It would be called, "On the Other Side" in reference to a range of recurring nightmares I had for the first ten of the seventeen years of her illness. The dreams were all variations on the same theme... I was always stuck on the other side of the shatterproof, soundproofed window as she was mugged, the other side of the pond as she was buried in the mudslide, the other side of the turquoise lagoon as she drowned.

And the feelings are indescribable and yet, so many of us are familiar with the extraordinary pain of watching those who we love the most, kill themselves slowly and painfully, whether that be through eating disorders, drug addiction, alcohol dependency or just very, very poor life choices.

Not to minimise the angst of those who are compelled towards death by the strength of their addictions, but I honestly believe, and I'll speak only for myself in an attempt to avoid sweeping generalisations... I honestly believe that it is more painful to watch someone you love in agony than it is to be in agony yourself.

The Other Side exists for all of us at some point in our lives, but rarely to the degree that it does when it is the absurd chaos and torment of severe mental health problems and addiction that tear a family apart.

No surgeon can heal the wound that divides two sisters. If I could find one who did, I'd sell everything I ever had.