I want...

I want my life back.
No matter how bad things were, nothing, NOTHING can be as bad as Anorexia.


My weight remains in limbo, my mind in hell.
I am unable to complete tasks I attempt as my brain is just too addled.


I have started taking Pregabalin, despite the fear that its most common side effect is weight gain. 
I don't care anymore.
I just want the illness to go.


I wish that I could be put to sleep whilst my weight is restored.


It occurs to me that I haven't written about The Woman lately.
I have so much to say. 
So many words in a swirling vortex - half formed ideas dance purple shadows in front of my closed eyelids in the early hours.
I resolve to write posts about the nature of Anorexia and my understanding of its relationship with anxiety and depression.
I swear I'll reply to friends, blog friends and world friends, whose words and caring constantly brush soft against my bruises.
And yet, come the morning, I haven't got the mental energy.
It's all I can do just to force the bran through my lips.


I want to go back to work.
I want to live again.
I want to eat without feeling like I'm sinning.
I want to live outside of hell.


I want to ignore the old parental adage that whispers that 'I want doesn't get'.

Graffiti That Grabbed Me

Taking a shortcut down a small alley the other day, I came across this message stencilled on a wall.

Ignoring the somewhat sinister effect of the dripping paint... the message itself brought a little flame of hopefulness in the midst of all the dark.

"You're Gonna Be Okay".

The feather-gentle sinking into reassurance. A warm blanket round the shoulders of a shaking crash victim.

Reckon we could all do with hearing that phrase sometimes. 

Hits From Reality

Things have been pretty awful. (An oxymoronic phrase if ever you saw one)

Two weeks ago I began frantically re-feeding after dutifully attending a routine fortnightly 'weigh in' at the unit, where they have insisted on monitoring me.

I hadn't quite realised how horrific I looked until I faced the concrete reality of the much feared scales. I hadn't really SEEN my sunken sockets and protruding cheek bones.

My weight had dropped below the 5 stone (70 pounds) mark again.

They told me I had a week to turn it around or... hospitalisation.

Despite my subsequent weight gain, later blood results showed that my liver had gone into crisis with ALT levels soaring.

Last Friday was a fairly terrifying of panic stricken phonecalls from the unit, my GP and the hospital. By early evening, I was sitting in A&E whilst too kind doctors apologetically eased needles into swollen veins.

No wonder I weighed light on the scales.

I wondered if they were going to bleed me dry.

Following three days of sterile corridors and needles and bleeping machines and spidery graphs and the clinging smell of industrial disinfectant and linoleum, they were satisfied that my levels had dropped and that the alarming elevation in ALTS was either due to the effects of prolonged starvation or to the delicate process of re-feeding.

I haven't been able to think straight for a while.

I'm still struggling to order my thoughts and to complete even the smallest of tasks. The painting was one thing I managed to finish, and now this blog post is another, although I haven't got the emotional strength to write about the things I want to; things that swirl in frenetic streaks through my mind, clamouring and clambering over my sleep.

There is no rest...

Enough now.

Paint For Peace

I CHOOSE LIFE

Life Outside...

I want to be honest.

Although nothing in me will tolerate the conditions of returning to the unit, I am, quite frankly, finding it very hard to manage the process of re-feeding.

It's tough going from the moment I wake up.

Impossible not to compromise on the calories I'm supposed to be having.

My weight is down to 5 stone, BMI 13 point something... maybe less.

I'm going to do a meal plan for tomorrow so I don't wake up and torture myself in the middle of the night with it all.

When in doubt...

... make an owl.

Fascinating Trivia

When I attended a review meeting at the unit this week, I caught up with some of the lovely girls from my group.

One of them asked me what I was doing with my days and it got me thinking...

Because my weight has dropped a little, I am finding concentration very difficult. I am also spending vast amounts of time walking about, an anorexic 'behaviour' really.

Anyway, what follows is a list of some random information.

Currently reading: How The Light Gets In - A fantastic first novel by M.J Hyland who creates a complex and fascinating protagonist, a young exchange student whose troubled life leaves her desperate to both 'fit in' and 'escape' almost simultaneously.

A Purpose Driven Life (Rick Warren). My spiritual reading being almost zilch over the past year, I decided that the title of this popular book sounded like something the doctor might order. The two and a half chapters I've read so far, have confirmed this instinct.

Being True To Life (David Richo) - A random find on a rickety table outside a secondhand bookshop last weekend. The whole purpose of this book is to inspire the reader to write poetry. Flicking through, I was instantly captivated by the lines:

I'm too depressed

To write a poem

Yet here it is

Simple. Brilliant. Truth.

So far, I've only read the introduction.

Currently Listening To: The Avett Brothers - I And Love And You - Loving this album at the moment!

Fleet Foxes - Helplessness Blues -Quirky, choral, undoubtedly indebted to Simon and Garfunkel for inspired melodies.

Mumford and Sons - Sigh No More - What an Album!

Anything country, as per usual really.

Currently Watching: T.V series, The Apprentice (even though I hate Alan Sugar and the absolute unbridled arrogance of the contestants!)

Film - Mystic River, which I turned off halfway through cos my attention span is short right now.

Currently coveting: The Canon 430D SLR camera, although I have also looked at the Canon SX30 IS. I am passionate about photography and would love to take it up as a proper hobby. However, I am reluctant to 'rush' into anything at the moment and these cameras are very expensive.

Currently Enjoying Eating: Tesco Goulash Hearty Soup This is one very good low calorie meal if you halve it and add the odd new potato and salad! (Not that I should be doing low cal in a big way but...)

Currently Creating: Felt Flowers (er... yeah... I'm not sure either but hey... I have some time to spare between the hours of 4 and 6 most mornings).

My Recovery Project Scrapbook is still looking sparse (but not quite as sparse as my recovery itself - ho ho ho, tounge in cheek, hurts a bit to laug, etc etc...). I'm trying to complete a page about scales and numbers.

And there you have it. An assortment of trivia.

Anyone want to share in a similar fashion? Feel free to reply in comments.

Bombshell

At around midday yesterday, unit staff announced the decision to reintroduce two much dreaded 'high energy' supplements into my meal plan.

The room around me blurred and whitened as my mind whirled into the shadow flecked vortex of spinning panic and dissociation.

Today I sit in relative calm.

The pain and the panic whirl around me but not within.

I discharged myself from the unit.

I'm not entirely sure how I will manage

but

failure is even less of an option that it was last week or the week before.

So:

The work of rebuilding continues.

A lot tougher and a little lonelier, but it continues nonetheless.

At the moment I am shuffling through rubble, feeling little more than dazed as I survey the extent of the wreckage and try to keep breathing through the swirling fusion of chalky dust and stone.

Er... About that "lighter note"...

... In all honesty, I find it significantly easier to write 'lighter note posts' when I am lighter in a more literal sense.

When I last posted I had taken almost two weeks away from the unit. One week on a trip down to the Cornish coast and a few days 'thinking time' to decide whether or not I was able to truely commit to treatment.
In that relatively short amount of time, I somehow managed to 'achieve' a comforting weight loss of four pounds (approx 2kg). Thus, with my BMI safely hovering around 14, I felt able to be a little more relaxed.
In the end though, the misery of the rapid increase in restrictive eating and the anxiety caused by the fact that I felt like a fugitive, aided my decision to return to the unit to continue the treatment.

After a couple of weeks of fairly intensive 'refeeding' (ugh! So much 'treatment lingo') Thursday's 'weigh in' revealed that my BMI is back up to 14.5. My tears though, were relatively shortlived as somehow, my brain appears to experience some miraculous kind of backlash against the anorexic desire to sabotage any weight gain through intense exercise.
For reasons possibly only known to God himself, despite the panic of being faced with jacket - potato - with - tuna - mayo lunches, and margarine sandwiches with hummus, I seem to have managed to maintain a fairly determined, positive attitude towards the concept of recovery for the remainder of the week. In fact, in another attempt at taking steps towards defeating this twisted illness, I handed in my pair of scales on Friday. As I passed them to one of my favourite staff members, I felt as though I was holding my hand against a hot iron.

The burn hasn't cooled yet and if anything, I know it will become even hotter tomorrow morning as 'weigh in' approaches.
I can only hope that time will afford some healing.

And on a lighter note...

... the sight of a pile of these made me grin as I stood in Topshop last week...

...And The Dream Of Being Special

Every now and then, I read something that is so searingly honest that reading it feels like pressing on a fracture.

I recently came across one such piece of writing and thought I'd share an extract of it here.

...And The Dream Of Being Someone Special

And in the summer sunshine

You believed the things they told you

For it's part of being little

And the trust is right inside you

Like a ball of summer sunshine

In the middle of your body

And you think that it will never

Fade away

But as the days go flying

You are troubled by the shadows

In the hearts and hands and faces

Of the people you had trusted

When they promised you the sunshine

For you hear the winter now

In what they say

And the dream of being special floats away

And the whole damn thing looks so grey.

Adrian Plass

Clearing Away The Rubbish

One Balloon At A Time

A girl floats above the earth, looking down at the ground with a mixture of longing and terror.
She is frightened of SO MANY THINGS.
Things that are UNNAMEABLE because to speak them may bring them into being.
To name them all would be exhausting.
And besides, some of the fear doesn't have a name.
It's just there. Just because.

The girl is kept suspended by a big bunch of balloons.
Each balloon has something written on it. Some element of her illness and of the fear which may lie behind it.
The balloons keep her safe. They keep her looking at the world without quite being in it/ part of it.

A Christian lady I met on a course I recently attended had this in her head as she prayed for me.
She told me that God was handing me a pair of scissors and that he was gently encouraging me to cut just one string...
She told me that I'd still have the other balloons so I wouldn't plummet to earth.

I thought about this a lot.
It reminded me of British graffiti artist, Banksy, and his brilliant image of the little girl holding the balloons.

Yesterday I drove into the unit turning the picture over in my head.
At lunchtime, I took the scissors and cut the balloon with the word 'Jacket Potato' on it.

It sounds absurd... but my fear of carbs is just one in a long list of foods which is holding me in this illness.

I should note here that, as promised, cutting the string attached to that particular balloon, has not made me fall to the ground, a puddle of flesh.
It caused huge fear afterwards, but I'm still very much suspended.

For now, I'm still fairly 'safe'.

I do know though, that I must work hard to seriously challenge this illness.
And that the best way to do it is to use the scissors.

Just one balloon at a time.

Words...

... don't come easily.

One of the (very many) unpleasant side effects of anorexia and the re-feeding process is constipation.

I know.

Not something that makes an attractive reading experience.

Nevertheless, a rather uncomfortable reality for me right now.

(One I deserve, no doubt)

I mention this because, as I try to sit down (which requires an untold degree of discipline given that standing up burns more calories) and write something, ANYTHING, about how things are looking for me (or... inside me) at the moment, the medical definition of the word 'impacted', paints pictures in my head.

The ever reliable Websters Dictionary defines the term as:

1 a : blocked by material (as feces) that is firmly packed or wedgedin position impacted colon>
b : wedged or lodged in a bodily passage impacted mass of feces>impacted fetus in the birth canal>
2 : characterized by broken ends of bone driven together impacted fracture>
3 of a tooth : wedged between the jawbone and another toothimpacted wisdom tooth>

... And all three of these seem to perfectly describe my current mental, emotional and spiritual state.

I feel the agony of the growing mass, bulging and folding against the walls of my mind. I feel the acrid sting of sobs, pushing painfully against the base of my throat and the heavy, heavy blur of words that won't attach to each other, trapped as they are, in the indistinct, impacted shit.

My communication channels been impacted for weeks now.

A Day in Life at The Unit. Part 2

The state of neglect that has befallen this particular pocket of cyberspace is indicative of some of the trauma and some of the inexplicable sense of exhaustion that follows the experience of being cooped up in the unit day in, day out.

By the time I get home in the evening (having first run frantically around a range of supermarkets / shops / country lanes in an attempt to 1)get some sort of exercise and 2)create some sort of sense of separation between my life as a recovering anorexic and my life as a human being) all I really want to do is disappear into a protective shell.

At the moment, I'm thanking God (and Kate and William, of course) for the second three day week; thus a break from the intense goldfish bowl environment of the unit. However, I know that come Tuesday, the brief period of reprieve is over and there can be no avoidance of further weight gain.
With no exercise, supervised feeding of high fat foods and the addition of an obligatory three hundred calorie 'Fortisip' drink, the gain is inevitable.

I could write about the splits in my mind; the constant warring thoughts; the terror of the terrible losses that grow as I gain... but it's too soul destroying to even think about right now.

I am ruled by absolute fear.

I'm afraid that I will gain weight and lose the sense of safety that I worked so long and so hard for.
I'm afraid that I will lose weight and be forced to include another bloody Fortisip in my diet.

I'm afraid that I will be on this refeeding thing forever, yet I'm frightened that I might start piling on weight at a ridiculous rate.

I'm afraid that I might not be able to get over this hideous illness and I'll never enjoy food again, but I'm scared by the physiological responses to refeeding which make me hungry much of the time and less able to resist food.

I want to get better
but i don't want to put on weight.

It feels like a no win situation.

And I feel like a hamster, stuck on a wheel that won't stop turning, so I can't stop running, so it won't stop turning, so I can't stop running... and on it goes.

A Day in Life at The Unit. Part 1

Thank you all for continuing to support my journey on the roller. I guess it's quiet right now.

Or rather, the screams are stifled much of the time.

I'm very tired and lacking in energy.

Re-feeding is an incredibly upsetting experience and I'm already dreading tomorrow (a 'weigh' day in case I haven't put on enough weight and have to face the prospect of even more food being added to my meals or snack times in the unit.

In keeping with the desperately 'split' nature of Anorexia, I am equally dreading the possibility that I may have put weight ON.

However, I write this after a day where I feel as though I have barely had a moment without stuffing some artificially sweetened / low fat / low - as - I - can - get - away - with foodstuff down my gullet. (And yes, technically speaking my meal plan is supposed to exclude all such products but hey, it's the weekend.)

I have actually put on a few pounds. This, a response to last week's blood results indicating the fact that my liver, heart and kidneys are struggling; my white blood cells are decreasing and my protein intake is way too low.

How this should be happening now, at a point where my diet is more varied than it has been for months, seems to beggar belief but my doctor explained that there is often a bit of a 'lag' with these things.

The guy who runs the program we follow at the unit (who, for reasons I will explain at some point, I will henceforth refer to as 'The Godfather') offered me the option of potassium supplements or 2 bananas a day.

Needless to say, the bananas are not a feature of my new heart-sustaining regime.

So.

Tomorrow is tough before it has begun.

Although that's not exactly positive thinking and I understand that I should possibly reframe that thought in a CBTish kind of way.

Still.

Here's how it's going to look on a purely practical level.

I'll get up early, shower and make myself look as 'well' as I possibly can without looking like one of those orange make up ladies behind the Max Factor / Elizabeth Arden counters at Debenhams.

I'll chop an apple or small pear into small slices and eat it painstakingly slowly regardless of whether I am early or late (and despite panicking that I am, in fact, the latter).

I'll blare my way through the beautiful countryside at a speed which is as far above the limit as the car in front will allow (OK... so I know this is not a good way of doing things but I have a weird obsession with never allowing myself to be too late), twitching and 'dancing' as much as I can to burn off calories.

Arriving on time, or even half an hour early, I'll drive around looking for a non existent parking space until I am about 5 minutes late.

Getting into the unit, I'll sign in and go through to find the girls I've grown to love so much.

It's Monday and the anxiety of the weigh in is thickly palpable. I'll dig out 'Sticker of the Week' and they'll all choose a cute, puffy animal sticker which they will either wear or stick on the new week's food diary. Some of us crowd around two clipboards, one of which contains a table headed 'Lunch' and the other 'Snacks'. We have a selection to choose from for the day. Girls will wander in and out as we take it in turns to go to the weighing room where one of the lovelier clinicians awaits our blustered, flustered entrance.

Once this procedure is over, The Godfather calls us to sit around in the circle and we check in and talk about our weight. No specifics. Just whether it's up or down and our feelings around it.

The group are then invited to feedback.

This goes on all morning until snack time at 10.30 and continues until lunchtime at 12.15.

Sitting around 2 tables, each with a hawk eyed member of staff, we swallow our food with varying degrees of cheer.

We are well bonded.

We are there because we want to get better. Sort of.

But there is rarely a meal where someone doesn't sit, tears running down tortured face, as the sandwich appears to be more threatening than usual.

I'll stop here because I'm so tired and I haven't been sleeping too well lately.